Haaland-Johansen Celine, Haugen Ingebjørg, Rokstad Anne Marie Mork
Norwegian National Centre for Ageing and Health, Vestfold Hospital Trust, Tønsberg, Norway.
Faculty of Health Studies, VID Specialized University, Oslo, Norway.
Patient Relat Outcome Meas. 2025 Jan 8;16:1-8. doi: 10.2147/PROM.S499063. eCollection 2025.
Being a young carer of a parent with dementia can be challenging, with many carers undertaking various practical and caring tasks. The weekend course Time to be young? gathers young carers, aiming to support them to cope with their challenges in everyday life. The aim of this study was to explore their role as a caregiver and the experienced impact of the course on their strategies of coping in their everyday life.
The study had a qualitative descriptive design inspired by Lindseth and Norberg's phenomenological hermeneutical method, using individual semi-structured interviews for data collection. The participants were recruited from former participants of the course Time to be young?, and the final sample included eight participants.
Through the analysis, four main themes were identified: 1) Help to accept the situation, 2) A sense of community, 3) The need for information and 4) The need to live one's own life. The study found that attendance at Time to be young? for young adults having a parent with dementia affected their coping strategies in their situation as a young care.
The study demonstrated the importance of courses like Time to be young?, and need for a meeting place, tailored information about dementia, and an opportunity to share and reflect upon their experiences as a young carer.
作为患有痴呆症父母的年轻照料者可能具有挑战性，许多照料者要承担各种实际照料任务。周末课程“重返青春时光？”召集年轻照料者，旨在支持他们应对日常生活中的挑战。本研究的目的是探讨他们作为照料者的角色以及该课程对他们日常生活应对策略的实际影响。
本研究采用质性描述性设计，受林德塞思和诺伯格的现象学诠释学方法启发，通过个体半结构化访谈收集数据。参与者从“重返青春时光？”课程的往届参与者中招募，最终样本包括8名参与者。
通过分析，确定了四个主要主题：1）帮助接受现状，2）社区感，3）信息需求，4）过自己生活的需求。研究发现，参加“重返青春时光？”课程对有患痴呆症父母的年轻人作为年轻照料者的应对策略产生了影响。
该研究证明了“重返青春时光？”这类课程的重要性，以及需要一个聚会场所、关于痴呆症的量身定制信息，以及一个分享和反思他们作为年轻照料者经历的机会。
