志愿者导航伙伴关系：探索早期姑息治疗的富有同情心的社区方法。
Volunteer navigation partnerships: Piloting a compassionate community approach to early palliative care.
机构信息
Faculty of Health and Social Development, University of British Columbia Okanagan, 1147 Research Road, Kelowna, BC, V1V 1V7, Canada.
Faculty of Nursing, University of Alberta, 11405-87 Avenue, Edmonton, AB, T6G 1C9, Canada.
出版信息
BMC Palliat Care. 2017 Jul 3;17(1):2. doi: 10.1186/s12904-017-0210-3.
BACKGROUND
A compassionate community approach to palliative care provides important rationale for building community-based hospice volunteer capacity. In this project, we piloted one such capacity-building model in which volunteers and a nurse partnered to provide navigation support beginning in the early palliative phase for adults living in community. The goal was to improve quality of life by developing independence, engagement, and community connections.
METHODS
Volunteers received navigation training through a three-day workshop and then conducted in-home visits with clients living with advanced chronic illness over one year. A nurse navigator provided education and mentorship. Mixed method evaluation data was collected from clients, volunteer navigators, the nurse navigator, and other stakeholders.
RESULTS
Seven volunteers were partnered with 18 clients. Over the one-year pilot, the volunteer navigators conducted visits in home or by phone every two to three weeks. Volunteers were skilled and resourceful in building connections and facilitating engagement. Although it took time to learn the navigator role, volunteers felt well-prepared and found the role satisfying and meaningful. Clients and family rated the service as highly important to their care because of how the volunteer helped to make the difficult experiences of aging and advanced chronic illness more livable. Significant benefits cited by clients were making good decisions for both now and in the future; having a surrogate social safety net; supporting engagement with life; and ultimately, transforming the experience of living with illness. Overall the program was perceived to be well-designed by stakeholders and meeting an important need in the community. Sustainability, however, was a concern expressed by both clients and volunteers.
CONCLUSIONS
Volunteers providing supportive navigation services during the early phase of palliative care is a feasible way to foster a compassionate community approach to care for an aging population. The program is now being implemented by hospice societies in diverse communities across Canada.
背景
以富有同情心的社区方式提供姑息治疗，为建立以社区为基础的临终关怀志愿者能力提供了重要依据。在这个项目中，我们试点了一种这样的能力建设模式，即志愿者和护士合作，为居住在社区的成年人提供早期姑息治疗阶段的导航支持。目标是通过发展独立性、参与度和社区联系来提高生活质量。
方法
志愿者通过为期三天的研讨会接受导航培训，然后在一年的时间里对患有晚期慢性疾病的客户进行家访。一名护士导航员提供教育和指导。从客户、志愿导航员、护士导航员和其他利益相关者那里收集了混合方法评估数据。
结果
七名志愿者与 18 名客户配对。在为期一年的试点期间，志愿导航员每两到三周就会到客户家中或通过电话进行访问。志愿者在建立联系和促进参与方面非常熟练和有创意。虽然需要时间来学习导航员的角色，但志愿者们感到准备充分，并且认为这个角色既令人满意又有意义。客户和家人对这项服务给予了高度评价，认为这对他们的护理非常重要，因为志愿者帮助他们更好地应对衰老和晚期慢性疾病带来的困难体验，使生活更具可操作性。客户提到的显著好处包括为现在和未来做出明智的决策；拥有一个代理社交安全网；支持参与生活；最终，改变了与疾病共存的体验。总的来说，利益相关者认为该计划设计合理，满足了社区的重要需求。然而，可持续性是客户和志愿者都表示关注的问题。
结论
在姑息治疗的早期阶段，志愿者提供支持性导航服务是培养富有同情心的社区关怀方式来照顾老龄化人口的一种可行方法。该计划目前正在加拿大各地的不同社区的临终关怀协会实施。
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