Institute of Mental Health, Semmelweis University, Budapest, Hungary.
2nd Department of Paediatrics, Semmelweis University, Budapest, Hungary.
Psychol Health. 2024 Jan-Feb;39(2):233-251. doi: 10.1080/08870446.2022.2057496. Epub 2022 Mar 30.
We aimed to assess the parent-child agreement on various domains of health-related quality of life (HRQoL) in a Hungarian pediatric sample. We examined the associations of demographic, illness-specific factors and the perceived consequences of the illness with the parent-child disagreement.
A cross-sectional study was carried out with child-parent pairs in a heterogeneous pediatric sample (n = 259).
Child and parent versions of Kidscreen-52 and the consequences scale of the Revised Illness Perception Questionnaire (IPQ-R) were applied. We used intraclass correlation coefficients to measure agreement. We computed directional discrepancies as dyadic indexes and applied them in multinomial regression analysis to identify factors influencing agreement.
Agreement between children and parents on the KIDSCREEN-52 instrument was moderate to good (ICC = 0.41 to 0.66). Significant (p < 0.005) parent-child disagreement was observed on 6 out of 10 dimensions of HRQoL: Parents rated their children's well-being lower on Physical Well-being, Psychological Well-being, Parent Relations and Home Life, Social Support and Peers, and Financial Resources scales and rated higher on Moods and Emotions compared to child-reported HRQoL. Both parent's and child's higher perceived illness consequences made disagreement significantly more likely on various domains.
Direction of disagreement may draw attention to potentially vulnerable domains of the child's well-being, like moods and emotions and self-perception.
我们旨在评估匈牙利儿科样本中父母与子女在健康相关生活质量（HRQoL）各个领域的一致性。我们研究了人口统计学、疾病特异性因素以及对疾病的感知后果与父母子女意见分歧之间的关联。
在异质儿科样本（n=259）中进行了一项横断面研究，涉及儿童-父母对子。
使用儿童和父母版本的 Kidscreen-52 以及修订后的疾病感知问卷（IPQ-R）的后果量表进行评估。我们使用组内相关系数来衡量一致性。我们计算了方向差异作为对偶指标，并将其应用于多项回归分析，以确定影响一致性的因素。
儿童和父母在 KIDSCREEN-52 工具上的一致性为中度至良好（ICC=0.41 至 0.66）。在 10 个 HRQoL 维度中的 6 个维度上观察到显著的（p<0.005）父母-子女分歧：父母对孩子的身体、心理、亲子关系和家庭生活、社会支持和同龄人以及财务资源方面的幸福感评分较低，而对情绪和情感的评分高于孩子报告的 HRQoL。父母和孩子对疾病后果的感知越高，在各个领域产生分歧的可能性就越大。
分歧的方向可能会引起对孩子幸福感的潜在脆弱领域的关注，如情绪和情感以及自我认知。
