IMIM, Institut Hospital del Mar d'Investigacions Mèdiques, Barcelona, Spain.
Health Qual Life Outcomes. 2013 Jun 20;11:101. doi: 10.1186/1477-7525-11-101.
Few studies have evaluated changes on parent-child agreement in HRQOL over time. The objectives of the study were to assess parent-child agreement on child's HRQOL in a 3-year longitudinal study, and to identify factors associated with possible disagreement.
A sample of Spanish children/adolescents aged 8-18 years and their parents both completed the KIDSCREEN-27 questionnaire. Data on age, gender, family socioeconomic status (SES), and mental health (Strengths and Difficulties Questionnaire, SDQ) was also collected at baseline (2003), and again after 3 years (2006). Changes in family composition were collected at follow-up. Agreement was assessed through intraclass correlation coefficient (ICC), and Bland and Altman plots. Generalizing Estimating Equation (GEE) models were built to analyze factors associated with parent-child disagreement.
A total of 418 parent-child pairs were analyzed. At baseline the level of agreement on HRQOL was low to moderate and it was related to the level of HRQOL reported. Physical well-being at baseline showed the highest level of parent-child agreement (ICC=0.59; 0.53-0.65) while less "observable" dimensions presented lower levels of agreement, (i.e. Psychological well-being: ICC= 0.46; 0.38-0.53). Agreement parent-child was lower at follow-up. Some interactions were found between rater and child's age; with increasing age, child scored lower than parents on Parents relationships and Autonomy (Beta [B] -0.47; -0.71 / -0.23) and the KIDSCREEN-10 (-0.49; -0.73 /-0.25).
Parent-child agreement on child's HRQOL is moderate to low and tends to diminish with children age. Measuring HRQOL of children/adolescents mainly in healthy population samples might require direct self-assessments.
很少有研究评估 HRQOL 随时间的变化中父母与子女之间的一致性。本研究的目的是在一项为期 3 年的纵向研究中评估儿童 HRQOL 的父母与子女之间的一致性，并确定与可能的不一致相关的因素。
研究对象为年龄在 8-18 岁的西班牙儿童/青少年及其父母，他们均完成了 KIDSCREEN-27 问卷。还在基线（2003 年）和 3 年后（2006 年）收集了年龄、性别、家庭社会经济地位（SES）和心理健康（长处和困难问卷，SDQ）的数据。在随访时收集了家庭构成的变化情况。通过组内相关系数（ICC）和 Bland 和 Altman 图评估一致性。建立了广义估计方程（GEE）模型，以分析与父母与子女不一致相关的因素。
共分析了 418 对父母-子女。基线时，HRQOL 的一致性程度为低至中度，与报告的 HRQOL 水平相关。基线时的身体福祉表现出最高水平的父母与子女一致性（ICC=0.59；0.53-0.65），而较“不可观察”的维度则呈现出较低的一致性水平（即心理福祉：ICC=0.46；0.38-0.53）。随访时父母与子女的一致性较低。发现了一些评分者与孩子年龄之间的交互作用；随着年龄的增长，孩子在父母关系和自主方面的得分低于父母（B 值为-0.47；-0.71/-0.23），以及 KIDSCREEN-10（-0.49；-0.73/-0.25）。
父母与子女对孩子 HRQOL 的一致性为中等至低等，且随着孩子年龄的增长而趋于下降。在主要为健康人群样本中测量儿童/青少年的 HRQOL 可能需要直接的自我评估。
