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为硬皮病患者开发最佳触摸屏界面。

Development of the optimal touchscreen interface for patients with scleroderma.

作者信息

Moroncini Gianluca, Brunzini Agnese, Papetti Alessandra, Filippini Emanuele, Maurizi Valentina, Cesaretti Giulia, Gesuita Rosaria, Gabrielli Armando, Germani Michele

机构信息

Dipartimento di Scienze Cliniche e Molecolari, Università Politecnica delle Marche, Ancona, Italy.

Clinica Medica, Azienda Ospedali Riuniti, Ancona, Italy.

出版信息

J Scleroderma Relat Disord. 2021 Jun;6(2):170-177. doi: 10.1177/2397198320965382. Epub 2020 Oct 19.

DOI:10.1177/2397198320965382
PMID:35386744
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8892922/
Abstract

Impaired hand function is a major contributor to overall disability and reduced health-related quality of life in scleroderma patients. A relevant issue concerns interaction of scleroderma subjects with touchscreen interfaces. This study aims at investigating this problem assessing scleroderma patients' performance with a novel, aptly designed, touchscreen application in order to identify critical items of touchscreen technology which may impair or facilitate the use by scleroderma subjects. Eighty scleroderma patients performed this novel application including three games, each of which tested a different gesture: tapping, dragging/dropping, and pinching-to-zoom. Eighty healthy subjects without hand impairments were recruited as controls. Scleroderma patients performed worse than healthy users in each game, and statistically significant negatively impacting items were identified. In the second phase of the study, the 10 worst touchscreen performers within the scleroderma cohort were recruited for a physio-rehabilitation trial based on the daily use at home of a modified version of the software application downloaded into the personal devices of patients. The results of this study allow introduction of guidelines to design accessible touchscreen interfaces for subjects with scleroderma and suggest that touchscreen technology may be included in self-administered physio-rehabilitation programs for scleroderma hand.

摘要

手部功能受损是硬皮病患者整体残疾和健康相关生活质量下降的主要因素。一个相关问题涉及硬皮病患者与触摸屏界面的交互。本研究旨在通过评估硬皮病患者使用一款新颖、设计恰当的触摸屏应用程序的表现来调查这一问题,以确定触摸屏技术中可能会妨碍或有助于硬皮病患者使用的关键项目。80名硬皮病患者使用了这款新颖的应用程序,其中包括三款游戏,每款游戏测试一种不同的手势:点击、拖放和捏合缩放。招募了80名无手部损伤的健康受试者作为对照。硬皮病患者在每款游戏中的表现均不如健康用户,并且确定了具有统计学显著负面影响的项目。在研究的第二阶段,从硬皮病队列中挑选出10名触摸屏操作表现最差的患者,基于下载到患者个人设备中的软件应用程序的改良版在家中日常使用情况进行物理康复试验。本研究结果有助于引入为硬皮病患者设计无障碍触摸屏界面的指导方针,并表明触摸屏技术可纳入硬皮病手部自我管理的物理康复计划。

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Randomized feasibility trial of the Scleroderma Patient-centered Intervention Network hand exercise program (SPIN-HAND): Study protocol.硬皮病患者中心干预网络手部锻炼计划(SPIN-HAND)的随机可行性试验:研究方案。
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Assessing disability and quality of life in systemic sclerosis: construct validities of the Cochin Hand Function Scale, Health Assessment Questionnaire (HAQ), Systemic Sclerosis HAQ, and Medical Outcomes Study 36-Item Short Form Health Survey.评估系统性硬化症患者的残疾情况和生活质量:科钦手功能量表、健康评估问卷(HAQ)、系统性硬化症HAQ及医学结局研究36项简短健康调查的结构效度。
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