Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm, Sweden.
Faculty of Health and Society, Malmö University, Malmö, Sweden.
Health Expect. 2022 Aug;25(4):1548-1554. doi: 10.1111/hex.13496. Epub 2022 Apr 7.
This study pertains to the design of a decision aid (DA) to shed light on information and support needs in colorectal cancer screening, with the aim to explore the calling patterns to the Screening of Swedish Colons (SCREESCO) study's helpline.
A cross-sectional study was conducted with data from documented telephone calls to the SCREESCO study, including individuals, 59-60 years, randomized to colonoscopy or high sensitive faecal immunochemical test (FIT).
More than 2000 calls (women 58.5%; colonoscopy 59%) were analysed. Calling patterns: unsubscribing from screening, confirmation of participation, logistical concerns about the screening procedure, counselling, and FIT screening difficulties or in need of a new FIT test. Comorbidity was the most frequent reason for unsubscribing and most of the counselling calls included questions about the FIT test or the colonoscopy.
Most of the calls to the helpline seemed to be related to individuals' lack of understanding about the organization of the screening programme and the screening procedure. Therefore, we find it important to further stress the tailoring part in our DA developing process, that is, provide limited information initially, with the possibility of access to more, if desired by the individual, still with respect to the individual's needs, health and digital literacy.
Individuals representing the public and invited to SCREESCO participated since we analysed their calls to the helpline. The findings will contribute to our continued work with the DA where the public will contribute and participate.
本研究旨在设计一个决策辅助工具（DA），以阐明结直肠癌筛查中的信息和支持需求，目的是探讨对 Screening of Swedish Colons（SCREESCO）研究热线的呼叫模式。
采用横断面研究方法，对 SCREESCO 研究中记录的电话呼叫数据进行分析，包括年龄为 59-60 岁、随机分配至结肠镜检查或高敏感粪便免疫化学试验（FIT）的个体。
分析了超过 2000 个电话（女性 58.5%；结肠镜检查 59%）。呼叫模式：取消筛查、确认参与、对筛查程序的后勤问题、咨询、FIT 筛查困难或需要新的 FIT 测试。合并症是取消筛查的最常见原因，大多数咨询电话都包含关于 FIT 测试或结肠镜检查的问题。
大多数热线电话似乎与个体对筛查计划和筛查程序的理解不足有关。因此，我们认为在我们的 DA 开发过程中进一步强调定制部分非常重要，即最初提供有限的信息，如果个体有需求，可以访问更多信息，但仍要尊重个体的需求、健康和数字素养。
代表公众并受邀参加 SCREESCO 的个体参与了我们对热线电话的分析。这些发现将有助于我们继续进行 DA 的工作，公众将在此过程中提供意见和参与。
