The Third Xiangya Hospital of Central South University, Changsha, China.
Second Xiangya Hospital of Central South University, Changsha, China.
Transpl Int. 2022 Mar 23;35:10411. doi: 10.3389/ti.2022.10411. eCollection 2022.
This study aimed to analyze the attitude, influencing factors and communication patterns of organ donation in Chinses families. We conducted in-depth interviews with 97 participants from 26 families in China from August 2018 to October 2020. Interviews were audio-recorded, transcribed by the researchers. Thematic analysis was used to analyze the data and Nvivo 12 was used to catalog coded data. Thirty-eight participants indicated that they would like to be a donor while the majority were unlikely to donate. Among those who were willing to donate, some disagreed with family members to donate organs. Themes found included attitude, the timing of thinking, taboo and fear, traditional beliefs, ethics and family communication patterns. Lack of knowledge, fear, taboo, some traditional beliefs and mistrust may discourage donation. Altruism and policy which is good for the family seem to encourage donation. We also constructed three family communication patterns to provide a deeper understanding of the family in China. This is the first qualitative study that analyzed attitude, influencing factors and communication patterns based on family units in China mainland. Our findings showed that family comes first in Chinese. We suggest that family-based consent and incentives are more suitable for the Chinese social context.
本研究旨在分析中国家庭对器官捐赠的态度、影响因素和沟通模式。我们于 2018 年 8 月至 2020 年 10 月期间对中国 26 个家庭的 97 名参与者进行了深入访谈。访谈内容进行了录音，并由研究人员进行了转录。采用主题分析方法对数据进行分析，并使用 Nvivo 12 对编码数据进行编目。38 名参与者表示愿意成为捐赠者，而大多数人则表示不愿意捐赠。在那些愿意捐赠的人中，一些人与家庭成员不同意捐赠器官。发现的主题包括态度、思考时机、禁忌和恐惧、传统信仰、伦理和家庭沟通模式。缺乏知识、恐惧、禁忌、一些传统信仰和不信任可能会阻碍捐赠。利他主义和对家庭有利的政策似乎鼓励了捐赠。我们还构建了三种家庭沟通模式，以更深入地了解中国家庭。这是第一项基于中国大陆家庭单位分析态度、影响因素和沟通模式的定性研究。我们的研究结果表明，家庭在中国处于首要地位。我们建议以家庭为基础的同意和激励措施更适合中国的社会背景。
