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数字孪生与儿童健康决策伦理

Digital twins and the ethics of health decision-making concerning children.

作者信息

Braun Matthias, Krutzinna Jenny

机构信息

Friedrich-Alexander-Universität Erlangen-Nürnberg, Research Group Ethics and Governance of Emerging Technologies, Kochstraße 6, 91054 Erlangen, Germany.

Centre for Research on Discretion and Paternalism, Department of Administration and Organization Theory, University of Bergen, Bergen, Norway.

出版信息

Patterns (N Y). 2022 Apr 8;3(4):100469. doi: 10.1016/j.patter.2022.100469.

DOI:10.1016/j.patter.2022.100469
PMID:35465232
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9023882/
Abstract

In this review, we explore from an ethical perspective the opportunities and challenges for decision-making concerning children if digital twins (DTs) were to be used to provide better information about their health status as a basis for proxy decision-making. We note a sense of urgency due to the speed of progress and implementation of this advancing technology and argue that bringing a solid conceptual basis into the development process is of utmost importance for the effective protection of children's rights and interests.

摘要

在本综述中,我们从伦理角度探讨了如果使用数字孪生(DTs)来提供有关儿童健康状况的更好信息,作为代理决策的基础,在儿童决策方面所面临的机遇和挑战。由于这项前沿技术的进步和实施速度,我们注意到一种紧迫感,并认为在开发过程中引入坚实的概念基础对于有效保护儿童权益至关重要。

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本文引用的文献

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Ethics of digital twins: four challenges.数字孪生的伦理:四大挑战。
J Med Ethics. 2022 Sep;48(9):579-580. doi: 10.1136/medethics-2021-107675. Epub 2021 Aug 11.
2
Biology begins to tangle with quantum computing.生物学开始与量子计算交织在一起。
Nat Methods. 2021 Jul;18(7):715-719. doi: 10.1038/s41592-021-01199-z.
3
Digital Twins for Multiple Sclerosis.数字孪生在多发性硬化症中的应用。
Front Immunol. 2021 May 3;12:669811. doi: 10.3389/fimmu.2021.669811. eCollection 2021.
4
Simulating (some) individuals in a connected world.在互联世界中模拟(部分)个体。
J Med Ethics. 2021 May 7. doi: 10.1136/medethics-2021-107447.
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The ethical application of biometric facial recognition technology.生物识别面部识别技术的伦理应用。
AI Soc. 2022;37(1):167-175. doi: 10.1007/s00146-021-01199-9. Epub 2021 Apr 13.
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Represent me: please! Towards an ethics of digital twins in medicine.请代表我!迈向医学数字替身的伦理准则。
J Med Ethics. 2021 Mar 15. doi: 10.1136/medethics-2020-106134.
7
Using digital twins in viral infection.在病毒感染中使用数字孪生技术。
Science. 2021 Mar 12;371(6534):1105-1106. doi: 10.1126/science.abf3370.
8
The Potential of a Digital Twin in Surgery.数字孪生技术在手术中的潜力。
Surg Innov. 2021 Aug;28(4):509-510. doi: 10.1177/1553350620975896. Epub 2020 Dec 8.
9
Vulnerable Life: Reflections on the Relationship Between Theological and Philosophical Ethics.《脆弱的生命:关于神学伦理与哲学伦理关系的思考》
Am J Bioeth. 2020 Dec;20(12):21-23. doi: 10.1080/15265161.2020.1832615.
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Digital twins to personalize medicine.数字孪生技术助力个体化医疗。
Genome Med. 2019 Dec 31;12(1):4. doi: 10.1186/s13073-019-0701-3.