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梅毒三字诀:一种针对梅毒疫情的特定领域可视化方法,旨在提高巴西母婴健康质量。

Syphilis Trigram: a domain-specific visualisation to combat syphilis epidemic and improve the quality of maternal and child health in Brazil.

机构信息

Centro de Informática, Universidade Federal de Pernambuco, Recife, Brazil.

Departamento de Mídias Digitais, Universidade Federal da Paraíba, João Pessoa, Brazil.

出版信息

BMC Pregnancy Childbirth. 2022 May 1;22(1):379. doi: 10.1186/s12884-022-04651-w.

Abstract

BACKGROUND

The Brazilian healthcare system is a large and complex system, specially considering its mixed public and private funding. The incidence of syphilis has increased in the last four years, in spite of the presence of an effective and available treatment. Furthermore, syphilis takes part in a group of disorders of compulsory notification to the public health surveillance. The epidemiological implications are especially important during pregnancy since it can lead to complications, related to prematurity stillbirth and miscarriage, in addition to congenital syphilis, characterized by multisystem involved in the newborn.

METHODS

The Action Research methodology was applied to address the complexity of the syphilis surveillance scenario in Pernambuco, Brazil. Iterative learning cycles were used, resulting in six cycles, followed by a formal validation of an operational version of the syphilis Trigram visualisation at the end of the process. The original data source was analyzed and prepared to be used without any new data or change in the ordinary procedure of the current system.

RESULTS

The main result of this work is the production of a Syphilis Trigram: a domain-specific infographic for presenting gestational data and birth data. The second contribution of this work is the Average Trigram, an organized pie chart which synthesizes the Syphilis Trigram relationship in an aggregated way. The visualization of both graphics is presented in an Infographic User Interface, a tool that gathers an infographic broad visualization aspect to data visualization. These interfaces also gather selections and filters tools to assist and refine the presented information. The user can experience a specific case-by-case view, in addition to an aggregated perspective according to the cities monitored by the system.

CONCLUSIONS

The proposed domain-specific visualization amplifies the understanding of each syphilis case and the overall characteristics of cases of a chosen city. This new information produced by the Trigram can help clarify the reinfection/relapse cases, optimize resource allocation and enhance the syphilis healthcare policies without the need of new data. Thus, this enables the health surveillance professionals to see the broad tendency, understand the key patterns through visualization, and take action in a feasible time.

摘要

背景

巴西的医疗保健系统庞大且复杂,特别是考虑到其公私混合资金。尽管有有效的治疗方法,但梅毒的发病率在过去四年中有所上升。此外,梅毒是需要强制向公共卫生监测报告的一组疾病之一。在妊娠期间,其流行病学意义尤为重要,因为它可能导致早产、死产和流产等并发症,此外还有先天性梅毒,其特征是新生儿多系统受累。

方法

应用行动研究方法解决巴西伯南布哥州梅毒监测的复杂性问题。使用迭代学习周期,共进行了六个周期,最后在过程结束时对梅毒 Trigram 可视化的操作版本进行了正式验证。分析了原始数据源,并在不使用新数据或改变当前系统常规程序的情况下进行了准备。

结果

这项工作的主要结果是制作了梅毒 Trigram:一种用于呈现妊娠数据和出生数据的特定领域信息图。这项工作的第二个贡献是平均 Trigram,这是一种组织良好的饼图,以聚合的方式综合梅毒 Trigram 的关系。这两个图形的可视化都在信息图用户界面中呈现,该工具将信息图的广泛可视化方面与数据可视化结合在一起。这些界面还汇集了选择和筛选工具,以协助和细化呈现的信息。用户可以体验特定案例的视图,以及根据系统监测的城市进行聚合的视角。

结论

所提出的特定领域可视化方法增强了对每个梅毒病例和所选城市病例总体特征的理解。Trigram 生成的新信息可以帮助澄清再感染/复发病例,优化资源分配,并增强梅毒医疗保健政策,而无需新数据。因此,这使卫生监测专业人员能够看到广泛的趋势,通过可视化理解关键模式,并在可行的时间内采取行动。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/eae3/9063215/33c3e07e5947/12884_2022_4651_Fig1_HTML.jpg

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