理解家中室内空气污染患者被污名化的经历。
Making sense of the delegitimation experiences of people suffering from indoor air problems in their homes.
机构信息
Department of Social Sciences, University of Eastern Finland, Kuopio, Finland.
Department of Finnish, University of Helsinki, Helsinki, Finland.
出版信息
Int J Qual Stud Health Well-being. 2022 Dec;17(1):2075533. doi: 10.1080/17482631.2022.2075533.
PURPOSE
Little is known about the delegitimation experiences of people who associate their health problems with the indoor air quality of their homes (i.e., indoor air sufferers). From other contexts, it is known that people suffering from contested illnesses frequently report delegitimation from authorities and laypersons. Therefore, we analysed delegitimation experiences among indoor air sufferers, focusing on how they explain why others delegitimize them.
METHOD
Two types of qualitative data-semi-structured interviews with eight people and essays written by 28 people-were subjected to a thematic analysis.
RESULTS
Thematic analysis revealed three themes: 1) ; 2) ; and 3) .
CONCLUSION
This study demonstrates that indoor air sufferers are vulnerable as individuals and as a group, and suggests that authorities working with people suffering from indoor air problems in homes must pay more attention to sufferers' ability/willingness to trust people and the system responsible for their care.
目的
人们将自身的健康问题与家中的室内空气质量联系起来（即室内空气不适者），但对于他们的去合法化体验却知之甚少。从其他背景来看，我们知道患有有争议疾病的人经常会遭受来自权威人士和非专业人士的去合法化。因此，我们分析了室内空气不适者的去合法化体验，重点关注他们如何解释为什么其他人会对他们进行去合法化。
方法
对 8 名参与者进行了半结构化访谈，并对 28 名参与者的文章进行了分析，采用了主题分析法。
结果
主题分析揭示了三个主题：1） ；2） ；3） 。
结论
本研究表明，室内空气不适者作为个体和群体都很脆弱，这表明在家中处理室内空气问题的人相关的权威机构必须更加关注患者信任他人和负责他们护理的系统的能力/意愿。
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