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德国面向银屑病患者的移动应用程序:系统检索与评估。

German Mobile Apps for Patients With Psoriasis: Systematic Search and Evaluation.

机构信息

Department of Dermatology, University Medical Center Mannheim, Heidelberg University, Mannheim, Germany.

Department of Internal Medicine - Rheumatology and Immunology, Friedrich-Alexander University Erlangen-Nürnberg, Universitätsklinikum Erlangen, Erlangen, Germany.

出版信息

JMIR Mhealth Uhealth. 2022 May 26;10(5):e34017. doi: 10.2196/34017.

Abstract

BACKGROUND

Psoriasis is a chronic inflammatory skin disease. The visibility of erythematous plaques on the skin as well as the pain and itchiness caused by the skin lesions frequently leads to psychological distress in patients. Smartphone apps are widespread and easily accessible. Earlier studies have shown that apps can effectively complement current management strategies for patients with psoriasis. However, no analysis of such apps has been published to date.

OBJECTIVE

The aim of this study is to systematically identify and objectively assess the quality of current publicly available German apps for patients with psoriasis using the Mobile Application Rating Scale (MARS) and compile brief ready-to-use app descriptions.

METHODS

We conducted a systematic search and assessment of German apps for patients with psoriasis available in the Google Play Store and Apple App Store. The identified apps were randomly assigned to 1 of 3 reviewers, who independently rated them using the German MARS (MARS-G). The MARS-G includes 15 items from 4 different sections (engagement, functionality, aesthetics, and information) to create an overall mean score for every app. Scores can range from 1 for the lowest-quality apps to 5 for the highest-quality apps. Apps were ranked according to their mean MARS-G rating, and the highest-ranked app was evaluated independently by 2 patients with psoriasis using the user version of the MARS-G (uMARS-G). Furthermore, app information, including origin, main function, and technical aspects, was compiled into a brief overview.

RESULTS

In total, we were able to identify 95 unique apps for psoriasis, of which 15 were available in both app stores. Of these apps, 5 were not specifically intended for patients with psoriasis, 1 was designed for clinical trials only, and 1 was no longer available at the time the evaluation process began. Consequently, the remaining 8 apps were included in the final evaluation. The mean MARS-G scores ranged from 3.51 to 4.18. The app with the highest mean MARS-G score was Psoriasis Helferin (4.18/5.00). When rated by patients, however, the app was rated lower in all subcategories, resulting in a mean uMARS-G score of 3.48. Most apps had a commercial background and a focus on symptom tracking. However, only a fraction of the apps assessed used validated instruments to measure the user's disease activity.

CONCLUSIONS

App quality was heterogeneous, and only a minority of the identified apps were available in both app stores. When evaluated by patients, app ratings were lower than when evaluated by health care professionals. This discrepancy highlights the importance of involving patients when developing and evaluating health-related apps as the factors that make an app appealing to users may differ between these 2 groups.

TRIAL REGISTRATION

Deutsches Register Klinischer Studien DRKS00020963; https://tinyurl.com/ye98an5b.

摘要

背景

银屑病是一种慢性炎症性皮肤病。皮肤红斑的可见性以及皮肤损伤引起的疼痛和瘙痒经常导致患者心理困扰。智能手机应用程序广泛且易于使用。早期研究表明,应用程序可以有效地补充银屑病患者当前的管理策略。然而,迄今为止,尚无关于此类应用程序的分析。

目的

本研究旨在使用移动应用程序评级量表(MARS)系统地识别和客观评估当前可用于银屑病患者的德国公开可用的应用程序的质量,并编写简短的即用型应用程序描述。

方法

我们在 Google Play 商店和 Apple App Store 中对德国的银屑病患者应用程序进行了系统搜索和评估。确定的应用程序随机分配给 3 位审阅者之一,他们使用德语 MARS(MARS-G)独立对其进行评分。MARS-G 包括 4 个部分(参与度、功能、美观和信息)的 15 个项目,为每个应用程序创建一个总体平均分数。分数范围从 1 到 5,分数越高表示应用程序质量越高。应用程序根据其平均 MARS-G 评分进行排名,排名最高的应用程序由 2 名银屑病患者使用用户版 MARS-G(uMARS-G)进行独立评估。此外,将应用程序信息(包括来源、主要功能和技术方面)编译成简要概述。

结果

总共可以识别出 95 个针对银屑病的独特应用程序,其中 15 个在两个应用商店中都有提供。这些应用程序中,有 5 个不是专门针对银屑病患者的,1 个仅用于临床试验,还有 1 个在评估开始时已经不再可用。因此,其余 8 个应用程序被纳入最终评估。平均 MARS-G 评分范围为 3.51 至 4.18。平均 MARS-G 评分最高的应用程序是 Psoriasis Helferin(4.18/5.00)。然而,当由患者进行评分时,该应用程序在所有子类别中的评分都较低,导致平均 uMARS-G 评分为 3.48。大多数应用程序都有商业背景,专注于症状跟踪。然而,评估的应用程序中只有一小部分使用经过验证的工具来测量用户的疾病活动。

结论

应用程序质量参差不齐,只有少数识别出的应用程序在两个应用商店中都有提供。当由患者进行评估时,应用程序的评分低于由医疗保健专业人员进行评估的评分。这种差异突出表明,在开发和评估与健康相关的应用程序时,需要让患者参与进来,因为让用户感兴趣的因素可能在这两个群体之间存在差异。

试验注册

德国临床试验注册处 DRKS00020963;https://tinyurl.com/ye98an5b。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/84ed/9185339/0638b128ac3d/mhealth_v10i5e34017_fig1.jpg

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