Krüger Lea, Panse Jens, Hugot Jessica, Dohmen Marc, Bremen Rebecca, Habel Ute, Brümmendorf Tim H, Ernstmann Nicole, Petermann-Meyer Andrea
Klinik für Hämatologie, Onkologie, Hämostaseologie und Stammzelltransplantation, Medizinische Fakultät, Rheinisch-Westfalische Technische Hochschule Aachen, Aachen, Germany.
Centrum für integrierte Onkologie, CIO ABCD, Aachen Bonn Cologne Duesseldorf, Germany.
Gesundheitswesen. 2023 Jun;85(6):529-536. doi: 10.1055/a-1775-8181. Epub 2022 Jun 2.
Families with one parent suffering from cancer are exposed to extraordinary emotional and organizational burdens, affecting underaged children. To help coordinated access to social and logistic support options and thus reduce the stress on family members, the project Brückenschlag was founded. The aim of this paper was to evaluate the implementation of this pilot project following the healthcare utilization model by Andersen.
A cross-sectional observational study was conducted using a mixed-method approach. Semi-structured written expert surveys (n=10) and secondary analysis of routine data of the care model (n=171 families) were combined.
Quantitative secondary analysis: The participating families had 1-7 children (median (m) 2, range (s) 6). In 66% of the cases, the mother was affected by cancer, in 20% the diseased parent was in a single parent household. The communication structure in these families was rated "limited" to "rather open". Of the total of 171 contacts (study period 9/14 to 11/17), 133 families made use of Brückenschlag; 59.2% of the contacts were made by psycho-oncologists and the social services department of the hospital. If the contact was initiated by the patients themselves or by psycho-oncologists, a guidance was established significantly more frequently (significance of chi-squared test 0.047). Qualitative analysis: There was a lack of awareness and coordination of existing support services and a lack of family resources to use existing support offers. Both the desired and the established support fell primarily in the area of organizational support. Brückenschlag improved networking and took on a navigating function for the families.
The data collected indicate that in families, matching the German average in their socio-demographic characteristics, a great need for organizational support develops as soon as one parent becomes sick with cancer. The model project Brückenschlag creates an access to support services for families with one parent suffering from cancer.
父母一方患有癌症的家庭承受着巨大的情感和组织负担，这会影响未成年子女。为了帮助协调获得社会和后勤支持的途径，从而减轻家庭成员的压力，启动了“搭桥行动”项目。本文旨在根据安徒生医疗利用模型评估该试点项目的实施情况。
采用混合方法进行横断面观察研究。将半结构化书面专家调查（n = 10）和护理模型常规数据的二次分析（n = 171个家庭）相结合。
定量二次分析：参与家庭有1至7个孩子（中位数（m）为2，范围（s）为6）。在66%的案例中，母亲患癌症，20%的患病父母处于单亲家庭。这些家庭的沟通结构被评为“有限”至“相当开放”。在总共171次接触中（研究期为2014年9月至2017年11月），133个家庭使用了“搭桥行动”；59.2%的接触由心理肿瘤学家和医院社会服务部门进行。如果接触由患者本人或心理肿瘤学家发起，建立指导的频率显著更高（卡方检验显著性为0.047）。定性分析：对现有支持服务缺乏认识和协调，且家庭缺乏利用现有支持的资源。期望的支持和已建立的支持主要都在组织支持领域。“搭桥行动”改善了网络联系，并为家庭发挥了导航功能。
收集到的数据表明，在社会人口特征与德国平均水平相当的家庭中，一旦父母一方患癌症，对组织支持的需求就会大增。“搭桥行动”示范项目为父母一方患癌症的家庭提供了获得支持服务的途径。
