Bodschwinna Daniela, Weissflog Gregor, Döhner Hartmut, Niederwieser Dietger, Mehnert-Theuerkauf Anja, Gündel Harald, Ernst Jochen, Goerling Ute, Hönig Klaus
Department of Psychosomatic Medicine and Psychotherapy, University Medical Center Ulm, Ulm, Germany.
Comprehensive Cancer Center Ulm, University Medical Center Ulm, Ulm, Germany.
Front Psychol. 2022 May 19;13:855638. doi: 10.3389/fpsyg.2022.855638. eCollection 2022.
Cancer affects the patients as well as their partners. Couples use different strategies to cope with cancer and the associated burden: individual coping, dyadic coping, and support from the social network and from professional health care. The aim of this qualitative dyadic interviews is to gain a deeper and more differentiated understanding of the support system inside and outside of the couple.
Ten heterosexual couples (patients: seven men and three women) with different ages (patients: range = 22-75; spouses: range = 22-74), different hematological cancer (e.g., acute myeloid leukemia, non-Hodgkin's lymphoma) and cancer stages (initial diagnosis or relapse) participated in the study. Semi-structured dyadic interviews were conducted. Data of the verbatim transcripts were systematically coded and analyzed following structuring content analysis.
Three main categories (individual coping, dyadic coping, and outside support) and ten subcategories about coping and support strategies in hematological cancer patients and their spouses could be identified. All couples described cohesion in relationship as an essential common dyadic coping strategy. Most strategies were focused on the patient's wellbeing. Furthermore, couples reported different common plans for the future: while some wanted to return to normality, others were reaching out for new goals.
Couples used various coping and support strategies, that differed in type and frequency between patients and spouses. Most of the strategies were perceived as beneficial, but some also triggered pressure. Overall, spouses seem to need more psychological support to improve their own wellbeing.
癌症不仅影响患者,也会波及他们的伴侣。夫妻双方会采用不同策略来应对癌症及其相关负担:个体应对、二元应对,以及来自社交网络和专业医疗保健的支持。本次质性二元访谈的目的是更深入、更有区分地了解夫妻内部和外部的支持系统。
十对异性恋夫妻(患者:七名男性和三名女性)参与了该研究,他们年龄各异(患者年龄范围 = 22 - 75岁;配偶年龄范围 = 22 - 74岁),患有不同的血液系统癌症(如急性髓系白血病、非霍奇金淋巴瘤),处于不同的癌症阶段(初始诊断或复发)。进行了半结构化二元访谈。逐字记录的数据按照结构化内容分析进行系统编码和分析。
可以识别出三个主要类别(个体应对、二元应对和外部支持)以及十个关于血液系统癌症患者及其配偶应对和支持策略的子类别。所有夫妻都将关系中的凝聚力描述为一种重要的共同二元应对策略。大多数策略都聚焦于患者的福祉。此外,夫妻双方报告了不同的未来共同计划:一些人希望恢复正常,另一些人则在追求新目标。
夫妻双方采用了各种应对和支持策略,患者和配偶在类型和频率上存在差异。大多数策略被认为是有益的,但有些也引发了压力。总体而言,配偶似乎需要更多心理支持来改善自身福祉。