Krista L. Harrison (
Irena Cenzer, University of California San Francisco.
Health Aff (Millwood). 2022 Jun;41(6):821-830. doi: 10.1377/hlthaff.2021.01985.
The Medicare hospice benefit was originally designed around a cancer disease paradigm but increasingly serves people living with dementia. At this time, almost half of all older adults receiving hospice care have dementia. Yet there is minimal evidence as to whether hospice benefits people living with dementia outside of nursing facilities. We asked whether and how the perceived quality of last-month-of-life care differed between people with and without dementia and whether hospice use among people living with dementia was associated with perceived quality of care compared with the quality of care for those who did not use hospice. We used nationally representative data from the National Health and Aging Trends Study and Medicare claims from the period 2011-17 to examine the impact of hospice enrollment on proxy perceptions of last-month-of-life care quality. Proxies of people living with dementia enrolled in hospice compared with proxies of those not enrolled more often reported care to be excellent (predicted probability: 52 percent versus 41 percent), more often reported having anxiety or sadness managed (67 percent versus 46 percent), and less often reported changes in care settings in the last three days of life (10 percent versus 25 percent). There were no differences in the impact of hospice on proxy ratings of care for people with and without dementia. Policy makers should consider these benefits when weighing changes to hospice policy and regulations that may affect people living with dementia.
医疗保险临终关怀福利最初是围绕癌症疾病范式设计的,但越来越多地为患有痴呆症的人提供服务。此时,几乎所有接受临终关怀的老年患者中有一半患有痴呆症。然而,几乎没有证据表明临终关怀是否对疗养院以外的痴呆症患者有益。我们询问了痴呆症患者和非痴呆症患者在临终前一个月的护理质量是否存在差异,以及与未使用临终关怀的人相比,痴呆症患者使用临终关怀是否与护理质量有关。我们使用了来自全国健康老龄化趋势研究的全国代表性数据和 2011-17 年期间的医疗保险索赔数据,以检查临终关怀登记对代理人对临终前护理质量的看法的影响。与未登记的人相比,患有痴呆症的人的代理人更经常报告护理质量非常好(预测概率:52%对 41%),更经常报告焦虑或悲伤得到了管理(67%对 46%),在生命的最后三天护理环境变化的情况较少(10%对 25%)。临终关怀对有和没有痴呆症的患者的代理人对护理的评价没有影响。政策制定者在权衡临终关怀政策和法规的变化时,应考虑到这些好处,这些变化可能会影响到痴呆症患者。