Department of Computer and Information Sciences, University of Strathclyde, Glasgow, Scotland.
Queen Elizabeth University Hospital, Glasgow, Scotland.
Stud Health Technol Inform. 2022 Jun 6;290:752-756. doi: 10.3233/SHTI220179.
Advanced chronic kidney disease is a serious and common medical condition with significant treatment choices incurring varying high treatment burdens. Better understanding on how to best collect quality of life (QoL) in this unique situation may help guide critical decisions. This study investigates the acceptability of digital QoL questionnaires completed during routine haemodialysis sessions. Qualitative data was collected from patient (n=23) and clinical researcher (n=2) interviews alongside analysis of data from questionnaires completed by patients (n=101) during a 6-week validation study. Interviews refined the content and format of digital QoL questionnaires and provided novel insights regarding how patients assessed and completed QoL questions. This study suggests collecting QoL data using digital tablet technology during routine haemodialysis clinics is both feasible and acceptable to patients and has provided novel insights that are not routinely available with traditional methods.
晚期慢性肾病是一种严重且常见的疾病，有多种治疗方案可供选择，但治疗负担也存在较大差异。深入了解如何在这种特殊情况下更好地收集生活质量（QoL）数据，可能有助于指导关键决策。本研究旨在调查在常规血液透析期间使用数字 QoL 问卷的可接受性。研究人员对患者（n=23）和临床研究人员（n=2）进行了访谈，并对 101 名患者在为期 6 周的验证研究期间完成的问卷数据进行了分析，收集了定性数据。访谈完善了数字 QoL 问卷的内容和格式，并提供了有关患者如何评估和完成 QoL 问题的新颖见解。本研究表明，在常规血液透析诊所使用平板电脑技术收集 QoL 数据对患者来说既可行又可接受，并提供了传统方法无法获得的新颖见解。
