Research Group Lifestyle and Health, Research Centre Healthy and Sustainable Living, HU University of Applied Sciences, Utrecht, The Netherlands.
Faculty of Social and Behavioural Sciences, Department of Pedagogical and Educational Sciences, Utrecht University, Utrecht, The Netherlands.
BMC Pediatr. 2022 Jun 11;22(1):338. doi: 10.1186/s12887-022-03398-9.
In The Netherlands, prematurely born infants and their parents are offered regular developmental check-ups in a hospital setting. In line with providing healthcare at distance, the use of video footage showing the infant's behavior and movements, taken by parents at home and assessed by professionals online, might be a fruitful future practice. The focus of this study was to gain insight into parental experiences with the Alberta Infant Motor Scale home-video method and their appraisal of its applicability for use in an outpatient neonatal follow-up clinic.
A qualitative descriptive study among parents of healthy extremely or very premature infants (GA 26.2-31.5 weeks) participating in a longitudinal study of motor development between 3-18 months corrected age. Ten semi-structured interviews were conducted and transcribed verbatim. Data was analyzed independently. Inductive content analysis was performed following the process of the AIMS home-video method.
Parents appraised the AIMS home-video method as manageable and fun to do. Instructions, instruction film, and checklists were clear. Transferring the video footage from their phone to their computer and uploading it to the web portal was sometimes time-consuming. Parents gained a better awareness of their infant's motor development and found the provided feedback a confirmation of what they already thought about their infant's development and was reassuring that their child was doing well. First-time parents seemed more uncertain and had a greater need for information about (motor) development, but on the other hand, also had confidence in their child. All parents thought that home-videos can be an addition to follow-up visits, but cannot replace (all) visits. It may be an opportunity to reduce the frequency of hospital visits, while still having their infant monitored.
Parents appraised the AIMS home-video method positively and are of the opinion that home-videos can be of added value in monitoring infants at risk in neonatal follow-up additional to hospital visits. In future research a user-friendly application and/or platform to exchange video footage safely between parents and professionals should be developed with all possible stakeholders involved and implementation should be explored.
在荷兰,早产儿及其父母会在医院环境中定期接受发育检查。为了实现远程医疗服务,使用父母在家中拍摄、专业人员在线评估的婴儿行为和运动录像可能是未来一种富有成效的实践方式。本研究的重点是深入了解父母对阿尔伯塔婴儿运动量表家庭录像方法的体验,以及他们对该方法在门诊新生儿随访诊所应用的看法。
本研究为一项针对健康的极低出生体重儿(GA 26.2-31.5 周)父母的定性描述性研究,这些父母的婴儿参与了一项 3-18 个月校正年龄的运动发育纵向研究。共进行了 10 次半结构式访谈,并逐字记录。数据独立分析。采用意向性内容分析法分析 AIMS 家庭录像方法的数据。
父母认为 AIMS 家庭录像方法易于管理且有趣。指导说明、教学影片和检查表都很清楚。将视频从手机传输到电脑并上传到网络门户有时需要花费一些时间。父母对婴儿的运动发育有了更好的了解,并且认为提供的反馈证实了他们对婴儿发育的看法,同时也让他们放心,他们的孩子发育良好。初次为人父母的父母似乎更加不确定,需要更多关于(运动)发育的信息,但另一方面,他们对自己的孩子也有信心。所有父母都认为家庭录像可以作为随访访问的补充,但不能替代(所有)访问。这可能是一个减少医院就诊频率的机会,同时仍然可以监测婴儿。
父母对 AIMS 家庭录像方法评价积极,认为家庭录像可以作为医院随访的补充,有助于监测有风险的婴儿。未来的研究应该开发一个用户友好的应用程序和/或平台,以便父母和专业人员安全地交换视频,涉及所有可能的利益相关者,并探索实施方法。