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心理社会因素预测癌症患儿家庭照顾者的适应能力:一项横断面研究。

Psychosocial Factors Predicting Resilience in Family Caregivers of Children with Cancer: A Cross-Sectional Study.

机构信息

Evidence-Based Medicine Research Unit, Hospital Infantil de México Federico Gómez, National Institute of Health. Dr. Márquez 162, Doctores, Cuauhtémoc, Mexico City 06720, Mexico.

Comisión Nacional de Arbitraje Médico. Mitla No. 250-10 Piso, esq. Eje 5 Sur (Eugenia). Col. Narvarte, Benito Juárez, Mexico City 03020, Mexico.

出版信息

Int J Environ Res Public Health. 2021 Jan 17;18(2):748. doi: 10.3390/ijerph18020748.

Abstract

Chronic diseases in childhood can affect the physical and mental health of patients and their families. The objective of this study was to identify the sociodemographic and psychosocial factors that predict resilience in family caregivers of children with cancer and to define whether there are differences in the levels of resilience derived from these sociodemographic variables. Three hundred and thirty family caregivers of children with cancer, with an average age of 32.6 years were interviewed. The caregivers responded to a battery of tests that included a questionnaire of sociodemographic variables, the Measuring Scale of Resilience, the Beck Depression Inventory, the Inventory of Quality of Life, the Beck Anxiety Inventory, an interview of caregiver burden and the World Health Organization Well-Being Index. The main findings indicate that family caregivers of children with cancer reported high levels of resilience, which were associated positively with quality of life, psychological well-being and years of study and associated negatively with depression, anxiety and caregiver burden. The variables that predicted resilience in families of children with cancer were quality of life, psychological well-being, depression and number of children. Family caregivers who were married and Catholic showed higher resilience scores. We conclude that being a caregiver in a family with children with cancer is associated with symptoms of anxiety and with depressive episodes. These issues can be overcome through family strength, well-being, quality of life and positive adaptation processes and mobilization of family resources.

摘要

儿童慢性病会影响患者及其家庭的身心健康。本研究旨在确定预测癌症患儿家庭照顾者适应力的社会人口学和心理社会因素,并确定这些社会人口学变量是否会导致适应力水平存在差异。对 330 名癌症患儿的家庭照顾者进行了访谈,他们的平均年龄为 32.6 岁。照顾者回答了一系列测试,包括社会人口学变量问卷、适应力测量量表、贝克抑郁量表、生活质量量表、贝克焦虑量表、照顾者负担访谈和世界卫生组织幸福感量表。主要发现表明,癌症患儿的家庭照顾者报告了较高的适应力水平,这与生活质量、心理幸福感和受教育年限呈正相关,与抑郁、焦虑和照顾者负担呈负相关。预测癌症患儿家庭适应力的变量是生活质量、心理幸福感、抑郁和孩子的数量。已婚和天主教的家庭照顾者表现出更高的适应力评分。我们的结论是,作为癌症患儿家庭的照顾者,与焦虑症状和抑郁发作有关。这些问题可以通过家庭力量、幸福感、生活质量和积极的适应过程以及调动家庭资源来克服。

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