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针对接受化疗的中国肺癌患者的具有文化敏感性的家庭导向尊严疗法的开发与可行性研究

Development and feasibility of culturally sensitive family-oriented dignity therapy for Chinese patients with lung cancer undergoing chemotherapy.

作者信息

Xiao Jinnan, Chow Ka Ming, Tang Siyuan, Chan Carmen Wh

机构信息

Xiangya School of Nursing, Central South University, Changsha, China.

The Nerthersole School of Nursing, Faculty of Medicine, The Chinese University of Hong, Hong Kong SAR, China.

出版信息

Asia Pac J Oncol Nurs. 2022 Apr 30;9(9):100078. doi: 10.1016/j.apjon.2022.100078. eCollection 2022 Sep.

Abstract

OBJECTIVE

It is well-documented in the literature that dignity therapy is feasible and effectively improves the end-of-life experience of the terminally ill. In a similar vein, this study aimed to develop and investigate the feasibility of evidence-based and culturally sensitive family-oriented dignity therapy for Chinese patients with lung cancer undergoing chemotherapy.

METHODS

Three phases of the Medical Research Council framework were adopted to guide the development of the novel dignity therapy intervention. It was preliminarily designed based on a qualitative study and a systematic review, Erikson's eighth stage of psychosocial development, and the dignity model. The feasibility and acceptability of the intervention were examined in a pilot randomized controlled trial with 12 recruited dyads of patients and family caregivers.

RESULTS

The intervention consists of three face-to-face sessions that facilitate participants' reminiscences and promote their communication. Recruitment and response rates for the feasibility study of the intervention were 92.3% and 75%, respectively. Both patients and family caregivers reported that the intervention alleviated their psychological distress and improved communication.

CONCLUSIONS

The Medical Research Council framework serves as a useful scientific basis for modifying dignity therapy with a culturally sensitive approach. The results of the feasibility study suggest that the family-oriented dignity therapy intervention is feasible, acceptable and has the potential to enhance the effects of dignity therapy.

摘要

目的

文献充分证明尊严疗法是可行的,且能有效改善绝症患者的临终体验。同样,本研究旨在为接受化疗的中国肺癌患者开发并研究基于证据且具有文化敏感性的家庭导向型尊严疗法的可行性。

方法

采用医学研究委员会框架的三个阶段来指导新型尊严疗法干预措施的开发。它基于一项定性研究、系统评价、埃里克森心理社会发展的第八阶段以及尊严模型进行初步设计。在一项针对12对招募的患者和家庭照顾者的试点随机对照试验中检验了该干预措施的可行性和可接受性。

结果

该干预包括三次面对面会议,有助于参与者回忆往事并促进他们的交流。该干预措施可行性研究的招募率和回应率分别为92.3%和75%。患者和家庭照顾者均报告称该干预减轻了他们的心理困扰并改善了沟通。

结论

医学研究委员会框架为以具有文化敏感性的方法调整尊严疗法提供了有用的科学依据。可行性研究结果表明,家庭导向型尊严疗法干预措施是可行的、可接受的,并且有可能增强尊严疗法的效果。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/9aa1/9188959/3775d078fb6b/gr1.jpg

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