Gabellone Alessandra, Marzulli Lucia, Matera Emilia, Petruzzelli Maria Giuseppina, Margari Anna, Giannico Orazio Valerio, Margari Lucia
Department of Basic Medical Sciences, Neurosciences and Sense Organs, University of Bari "Aldo Moro", 70121 Bari, Italy.
Department of Biomedical Sciences and Human Oncology, University of Bari "Aldo Moro", 70121 Bari, Italy.
J Clin Med. 2022 Jun 8;11(12):3294. doi: 10.3390/jcm11123294.
Telemedicine has recently been used for diagnosis and interventions inpatients with autism spectrum disorder (ASD), traditionally performed in-person, but little attention has been paid to user expectations prior to its use. The aim of this study is to compare the expectations and concerns of 50 healthcare professionals and 45 parents of children with ASD regarding the use of telemedicine for diagnostic or treatment purposes. Parents have higher expectations for the use of telemedicine as an alternative ( = 0.0223) and supplement ( = 0.0061) to in-person diagnosis of ASD, as well as a supplement to traditional intervention ( ≤ 0.0001). In addition, while they also have greater hope for improvement in family routines ( = 0.0034) and parenting skills in child management ( = 0.0147), they express greater concern about the need for active parental involvement/supervision during telemedicine services ( = 0.015) and changes in the behaviour of the child with ASD during telemedicine services ( = 0.049). On the other hand, healthcare professionals are more concerned about barriers such as lack of devices ( = 0.000), unfamiliarity with the technology ( = 0.000), poor quality of internet connection ( = 0.006), and severity of ASD ( = 0.000). To achieve promising healthcare for ASD patients, the telemedicine service should try to meet the needs and preferences of both healthcare professionals and parents, as well as identify and, if possible, reduce perceived barriers.
远程医疗最近已被用于自闭症谱系障碍（ASD）患者的诊断和干预，这些诊断和干预传统上是面对面进行的，但在使用远程医疗之前，很少有人关注用户的期望。本研究的目的是比较50名医疗保健专业人员和45名ASD儿童家长对于将远程医疗用于诊断或治疗目的的期望和担忧。家长对使用远程医疗作为ASD面对面诊断的替代方式（P = 0.0223）和补充方式（P = 0.0061）以及传统干预的补充方式（P≤0.0001）有更高的期望。此外，虽然他们也对家庭日常的改善（P = 0.0034）和儿童管理中育儿技能的提高（P = 0.0147）抱有更大希望，但他们对远程医疗服务期间家长积极参与/监督的必要性（P = 0.015）以及ASD儿童在远程医疗服务期间行为的变化（P = 0.049）表达了更大的担忧。另一方面，医疗保健专业人员更关注诸如设备不足（P = 0.000）、对技术不熟悉（P = 0.000）、网络连接质量差（P = 0.006）以及ASD的严重程度（P = 0.000）等障碍。为了实现对ASD患者有前景的医疗保健，远程医疗服务应努力满足医疗保健专业人员和家长的需求及偏好，并识别并尽可能减少感知到的障碍。
