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Autism Adulthood. 2021 Dec 1;3(4):330-338. doi: 10.1089/aut.2020.0083. Epub 2021 Dec 7.
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Res Autism Spectr Disord. 2021 May;83:101747. doi: 10.1016/j.rasd.2021.101747. Epub 2021 Mar 6.
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The impact of early stages of COVID-19 on the mental health of autistic adults in the United Kingdom: A longitudinal mixed-methods study.《COVID-19 早期对英国成年自闭症患者心理健康的影响:一项纵向混合方法研究》
Autism. 2022 Oct;26(7):1765-1782. doi: 10.1177/13623613211065543. Epub 2022 Jan 27.
4
"It was surprisingly equivalent to the appointment I had in person": Advantages and disadvantages of synchronous telehealth for delivering primary care for autistic adults.“这与我亲自预约的效果惊人地相当”:同步远程医疗在为自闭症成年人提供初级保健方面的优缺点。
Autism. 2022 Aug;26(6):1573-1580. doi: 10.1177/13623613211060589. Epub 2021 Nov 30.
5
COVID-19, social isolation and the mental health of autistic people and their families: A qualitative study.2019冠状病毒病、社交隔离与自闭症患者及其家庭的心理健康:一项定性研究。
Autism. 2022 May;26(4):914-927. doi: 10.1177/13623613211035936. Epub 2021 Aug 6.
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'Anything but the phone!': Communication mode preferences in the autism community.“除了电话什么都行!”:自闭症群体的沟通模式偏好。
Autism. 2021 Nov;25(8):2265-2278. doi: 10.1177/13623613211014995. Epub 2021 Jun 25.
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Healthcare barriers, what about older age? A comment on Malik-Soni et al.医疗保健障碍,老年群体的情况如何?对马利克 - 索尼等人的评论
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Pervasive Undisclosed Conflicts of Interest in Applied Behavior Analysis Autism Literature.应用行为分析自闭症文献中普遍存在未披露的利益冲突。
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How to improve healthcare for autistic people: A qualitative study of the views of autistic people and clinicians.如何改善自闭症患者的医疗保健:自闭症患者和临床医生观点的定性研究。
Autism. 2021 Apr;25(3):774-785. doi: 10.1177/1362361321993709.
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Remote assessment in adults with Autism or ADHD: A service user satisfaction survey.成人自闭症或注意力缺陷多动障碍的远程评估:服务使用者满意度调查。
PLoS One. 2021 Mar 25;16(3):e0249237. doi: 10.1371/journal.pone.0249237. eCollection 2021.

“关键不在于技术本身,而在于使用技术的个体”:在 COVID-19 大流行期间为自闭症成年人提供远程医疗服务的观点。

'The key to this is not so much the technology. It's the individual who is using the technology': Perspectives on telehealth delivery for autistic adults during the COVID-19 pandemic.

机构信息

Autistica, London, UK.

King's College London, UK.

出版信息

Autism. 2023 Feb;27(2):552-564. doi: 10.1177/13623613221108010. Epub 2022 Jul 6.

DOI:10.1177/13623613221108010
PMID:35791666
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10076158/
Abstract

The COVID-19 pandemic meant that a lot of healthcare services had to move online, such as to video-calls, or to telephone. However, not many studies have looked at how autistic adults feel about this kind of service delivery. It is important to know this, as autistic people may have poorer health than non-autistic people, and they may also struggle to access services more than non-autistic people. This study asked 11 autistic adults (aged 27-67 years), seven family members/carers (aged 44-75) reporting about autistic adults and six service providers about their experiences of accessing or providing a telehealth service. These experiences were collected through interviews, which were then analysed through thematic analysis. Two main themes were: technology aids communication and access - except when it doesn't, and in/flexibility. The themes pointed out some positive aspects of telehealth delivery, including improved communication and decreased stress. The themes also pointed out negative aspects of telehealth, such as increased rigidity of the healthcare system, amplifying pre-existing barriers. Because autistic people have many barriers to accessing healthcare, this study encourages researchers and healthcare providers to think about how such barriers could be addressed through telehealth, and about the possible limitations of telehealth for some autistic people.

摘要

新冠疫情大流行意味着许多医疗保健服务必须转移到线上,例如视频通话或电话。然而,很少有研究关注自闭症成年人对这种服务提供方式的感受。了解这一点很重要,因为自闭症患者的健康状况可能比非自闭症患者差,而且他们可能比非自闭症患者更难以获得服务。本研究询问了 11 名自闭症成年人(年龄 27-67 岁)、7 名家庭成员/照顾者(年龄 44-75 岁)报告的关于自闭症成年人的情况,以及 6 名服务提供者关于他们获取或提供远程医疗服务的体验。这些体验是通过访谈收集的,然后通过主题分析进行分析。两个主要主题是:技术辅助沟通和访问——除非它不能,以及灵活性。这些主题指出了远程医疗服务的一些积极方面,包括改善沟通和减少压力。主题还指出了远程医疗的一些负面方面,例如医疗系统的僵化加剧,放大了先前存在的障碍。由于自闭症患者在获得医疗保健方面存在许多障碍,本研究鼓励研究人员和医疗保健提供者思考如何通过远程医疗来解决这些障碍,以及远程医疗对一些自闭症患者可能存在的局限性。