Autistica, London, UK.
King's College London, UK.
Autism. 2023 Feb;27(2):552-564. doi: 10.1177/13623613221108010. Epub 2022 Jul 6.
The COVID-19 pandemic meant that a lot of healthcare services had to move online, such as to video-calls, or to telephone. However, not many studies have looked at how autistic adults feel about this kind of service delivery. It is important to know this, as autistic people may have poorer health than non-autistic people, and they may also struggle to access services more than non-autistic people. This study asked 11 autistic adults (aged 27-67 years), seven family members/carers (aged 44-75) reporting about autistic adults and six service providers about their experiences of accessing or providing a telehealth service. These experiences were collected through interviews, which were then analysed through thematic analysis. Two main themes were: technology aids communication and access - except when it doesn't, and in/flexibility. The themes pointed out some positive aspects of telehealth delivery, including improved communication and decreased stress. The themes also pointed out negative aspects of telehealth, such as increased rigidity of the healthcare system, amplifying pre-existing barriers. Because autistic people have many barriers to accessing healthcare, this study encourages researchers and healthcare providers to think about how such barriers could be addressed through telehealth, and about the possible limitations of telehealth for some autistic people.
新冠疫情大流行意味着许多医疗保健服务必须转移到线上,例如视频通话或电话。然而,很少有研究关注自闭症成年人对这种服务提供方式的感受。了解这一点很重要,因为自闭症患者的健康状况可能比非自闭症患者差,而且他们可能比非自闭症患者更难以获得服务。本研究询问了 11 名自闭症成年人(年龄 27-67 岁)、7 名家庭成员/照顾者(年龄 44-75 岁)报告的关于自闭症成年人的情况,以及 6 名服务提供者关于他们获取或提供远程医疗服务的体验。这些体验是通过访谈收集的,然后通过主题分析进行分析。两个主要主题是:技术辅助沟通和访问——除非它不能,以及灵活性。这些主题指出了远程医疗服务的一些积极方面,包括改善沟通和减少压力。主题还指出了远程医疗的一些负面方面,例如医疗系统的僵化加剧,放大了先前存在的障碍。由于自闭症患者在获得医疗保健方面存在许多障碍,本研究鼓励研究人员和医疗保健提供者思考如何通过远程医疗来解决这些障碍,以及远程医疗对一些自闭症患者可能存在的局限性。