Krontoft Anna Sophie Belling, Jensen Johanna Walsøe, Pedersen Mette Charlotte, Pors Maria, Kaur-Knudsen Diljit, Zachariae Claus, Skov Lone
Department of Dermatology and Allergy, Herlev and Gentofte Hospital, University of Copenhagen, Hellerup, Denmark.
J Patient Rep Outcomes. 2022 Jul 23;6(1):81. doi: 10.1186/s41687-022-00490-7.
Patient-reported outcome measures (PROMs) are emerging tools used to capture a patient's daily health status and enhance communication between patients and healthcare professionals. This study examined whether PROMs can be used to predict consultation needs in an outpatient clinic setting including patients diagnosed with psoriasis.
We evaluated a nationally developed set of PROMs for psoriasis patients, which included a standard set of questionnaires that capture patients' perceptions of their experience and quality of life. Patients (n = 187) answered the psoriasis PROMs prior to an in-person consultation. Their responses were evaluated alongside patient, doctor, and nurse opinions on whether the subsequent consultation was necessary. Additionally, comments about the consultations from the patient, doctor, and nurse were collected and provided insights as to why certain consultations were deemed necessary.
Comparing the patient, doctor, and nurse responses addressing a need for consultation compared to the coded psoriasis PROMs results (red or green/yellow outcome), 23% of the patients with a green/yellow outcome were in need of a doctor's consultation. Upon considering a subset of psoriasis PROMs questionnaires that reflect subjective responses (e.g., DLQI, PEST, MDI-2, and side effects), the proportion of patients that yielded a green/yellow outcome and were identified to require a doctor consultation increased to approximately 45%.
The preliminary results show that the psoriasis PROMs were supportive in the consultation but alone cannot sufficiently guide healthcare professionals to determine whether in-person consultations are required.
患者报告结局测量指标（PROMs）是用于获取患者日常健康状况并加强患者与医护人员之间沟通的新兴工具。本研究调查了PROMs是否可用于预测门诊环境中包括银屑病患者在内的会诊需求。
我们评估了一套全国范围内为银屑病患者开发的PROMs，其中包括一组标准问卷，用于了解患者对自身经历和生活质量的看法。187名患者在面对面会诊前回答了银屑病PROMs问卷。他们的回答与患者、医生和护士关于后续会诊是否必要的意见一起进行评估。此外，还收集了患者、医生和护士对会诊的评论，并提供了关于某些会诊被认为必要的原因的见解。
将患者、医生和护士关于会诊需求的回答与编码后的银屑病PROMs结果（红色或绿色/黄色结果）进行比较，23%绿色/黄色结果的患者需要医生会诊。在考虑反映主观回答的银屑病PROMs问卷子集（如DLQI、PEST、MDI-2和副作用）时，绿色/黄色结果且被确定需要医生会诊的患者比例增加到约45%。
初步结果表明，银屑病PROMs在会诊中具有辅助作用，但仅凭其自身不足以指导医护人员确定是否需要面对面会诊。
