Meyer Laurel E, Porter Lauren, Reilly Meghan E, Johnson Caroline, Safir Salman, Greenfield Shelly F, Silverman Benjamin C, Hudson James I, Javaras Kristin N
McLean Hospital, Division of Women's Mental Health, Belmont, MA.
Harvard Medical School, Department of Psychiatry, Boston, MA.
Res Ethics. 2022 Jan;18(1):64-83. doi: 10.1177/17470161211054021. Epub 2021 Oct 30.
Automated, wearable cameras can benefit health-related research by capturing accurate and objective information about individuals' daily experiences. However, wearable cameras present unique privacy- and confidentiality-related risks due to the possibility of the images capturing identifying or sensitive information from participants and third parties. Although best practice guidelines for ethical research with wearable cameras have been published, limited information exists on the risks of studies using wearable cameras. The aim of this literature review was to survey risks related to using wearable cameras, and precautions taken to reduce those risks, as reported in empirical research. Forty-five publications, comprising 36 independent studies, were reviewed, and findings revealed that participants' primary concerns with using wearable cameras included physical inconvenience and discomfort in certain situations (e.g., public settings). None of the studies reviewed reported any serious adverse events. Although it is possible that reported findings do not include all risks experienced by participants in research with wearable cameras, our findings suggest a low level of risk to participants. However, it is important that investigators adopt recommended precautions, which can promote autonomy and reduce risks, including participant discomfort.
自动化可穿戴相机能够通过捕捉有关个人日常经历的准确且客观的信息，为健康相关研究带来益处。然而，由于图像有可能捕捉到参与者和第三方的身份识别信息或敏感信息，可穿戴相机存在与隐私和保密相关的独特风险。尽管已经发布了关于使用可穿戴相机进行伦理研究的最佳实践指南，但关于使用可穿戴相机的研究风险的信息却很有限。这篇文献综述的目的是调查实证研究中报告的与使用可穿戴相机相关的风险，以及为降低这些风险所采取的预防措施。我们对45篇出版物（包括36项独立研究）进行了综述，结果显示参与者使用可穿戴相机的主要担忧包括在某些情况下（如公共场所）身体上的不便和不适。所审查的研究均未报告任何严重不良事件。尽管报告的结果可能并未涵盖可穿戴相机研究中参与者经历的所有风险，但我们的研究结果表明参与者面临的风险较低。然而，研究人员采用推荐的预防措施很重要，这些措施可以促进自主性并降低风险，包括减少参与者的不适。
