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文化适应预防痴呆症的证据在族裔多样化社区:从共同设计中吸取的经验教训。

Culturally Adapting Evidence on Dementia Prevention for Ethnically Diverse Communities: Lessons Learnt from co-design.

机构信息

Division of Social Gerontology, National Ageing Research Institute.

School of Social Sciences, University of Western Australia.

出版信息

Clin Gerontol. 2023 Mar-Apr;46(2):155-167. doi: 10.1080/07317115.2022.2101968. Epub 2022 Jul 27.

DOI:10.1080/07317115.2022.2101968
PMID:35894749
Abstract

OBJECTIVES

40% of dementia cases can be prevented by addressing 12 lifestyle factors. These risk factors have increased presence in ethnic minorities, yet dementia prevention messages have not reached these communities. This article investigates the experience of co-designing a dementia prevention animated film with 9 ethnic groups in Australia.

METHODS

Evidence-based recommendations were adapted through an iterative process involving workshops with a stakeholder advisory committee and nine focus groups with 104 participants from the Arabic-, Hindi-, Tamil-, Cantonese-, Mandarin-, Greek-, Italian-, Spanish-, and Vietnamese-speaking communities. Data were analyzed using the Normalization Process Theory.

RESULTS

Cultural adaptation involves consideration of the mode of delivery, imagery and tone of the resource being developed; ensuring cultural adequacy; anticipating the need of the end-users; and managing linguistic challenges associated with working across multiple languages.

CONCLUSIONS

Learnings from this co-design process offer valuable insights for researchers and program developers who work with ethnic minority groups.

CLINICAL IMPLICATIONS

• Adaptation across cultures and languages is a negotiation not a consensus building exercise• Linguistic adaptation requires consideration of the education levels, and linguistic and intergenerational preferences of community members• Co-designing across multiple languages and cultures risks "flattening out" key aspects of cultural specificity.

摘要

目的

通过针对 12 种生活方式因素,可以预防 40%的痴呆病例。这些风险因素在少数民族中更为常见,但痴呆预防信息尚未传达给这些群体。本文调查了与澳大利亚 9 个族裔群体共同设计一部痴呆预防动画片的经验。

方法

通过涉及利益相关者咨询委员会的研讨会和来自阿拉伯语、印地语、泰米尔语、粤语、普通话、希腊语、意大利语、西班牙语和越南语社区的 104 名参与者的 9 个焦点小组,对基于证据的建议进行了适应性调整。使用规范过程理论对数据进行分析。

结果

文化适应性涉及考虑交付模式、正在开发的资源的图像和语气;确保文化适宜性;预测最终用户的需求;并管理跨多种语言工作相关的语言挑战。

结论

本共同设计过程中的经验教训为与少数民族群体合作的研究人员和项目开发者提供了有价值的见解。

临床意义

  • 跨文化和语言的适应是一种协商,而不是共识建立的过程。

  • 语言适应需要考虑社区成员的教育水平、语言和代际偏好。

  • 跨多种语言和文化进行共同设计可能会“抹平”文化特异性的关键方面。

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