Danish Dementia Research Centre, Department of Neurology, Neuroscience Centre, Rigshospitalet, University of Copenhagen, Copenhagen, Denmark.
Migrant Health Clinic, Odense University Hospital, Odense, Denmark.
Int J Geriatr Psychiatry. 2022 Jan;37(1). doi: 10.1002/gps.5656. Epub 2021 Nov 18.
Proactive efforts that take language and cultural barriers into consideration may be needed to raise awareness of dementia and improve access to services in minority ethnic communities. The aim of this study was to assess the feasibility of a culturally tailored dementia information program and the immediate effects on participants' intention to seek help for memory problems, their knowledge and beliefs about dementia, and their knowledge about options for support.
A novel dementia information program, consisting of one 2-h session, was developed through a collaborative research process with primary care dementia coordinators and multicultural link workers as co-researchers. It provides basic knowledge about dementia to minority ethnic communities and can be delivered in a community setting by non-specialists.
Six information program sessions were conducted with a total of 110 participants; 65 Turkish, 19 Pakistani, 20 Arabic-speaking, and 6 with another minority ethnic heritage. The program had a significant effect on participants' immediate knowledge and beliefs about dementia as measured with a quiz (z = -2.02, p = 0.04, d = 0.90). In a post-program focus group meeting, facilitating multicultural link workers reported satisfaction with facilitator training, adopted recruitment strategies, and content and delivery of the information sessions and provided feedback on improving the program.
The results provide support for the feasibility of the culturally tailored dementia information program. The program has the potential to improve knowledge and beliefs about dementia and options for formal support in minority ethnic communities and seems easily implemented in existing services, and at a low cost.
为了提高少数民族群体对痴呆症的认识并改善其获取服务的途径，可能需要采取积极主动的措施来考虑语言和文化障碍。本研究旨在评估一项文化适配的痴呆症信息计划的可行性，以及该计划对参与者寻求记忆问题帮助的意愿、对痴呆症的知识和信念以及对支持选择的了解的即时影响。
通过与初级保健痴呆症协调员和多元文化联络工作者合作开展的研究过程，开发了一种新的痴呆症信息计划，包括一个 2 小时的会议。它向少数民族群体提供有关痴呆症的基本知识，并且可以由非专业人员在社区环境中提供。
共进行了六次信息计划会议，共有 110 名参与者参加，其中 65 名土耳其人，19 名巴基斯坦人，20 名阿拉伯语使用者，6 名其他少数民族背景。参与者在痴呆症的即时知识和信念方面的测验结果（z=-2.02，p=0.04，d=0.90）显示，该计划具有显著效果。在计划后的焦点小组会议上，担任促进者的多元文化联络工作者报告对促进者培训、采用的招募策略、信息会议的内容和交付以及改进计划的反馈感到满意。
研究结果为文化适配的痴呆症信息计划的可行性提供了支持。该计划有可能改善少数民族群体对痴呆症的知识和信念，以及对正式支持的选择，并在现有服务中似乎易于实施，且成本低廉。
