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面部和躯干联合痤疮的心理健康与社会影响评估:一项多国混合方法研究

Evaluation of Psychological Wellbeing and Social Impact of Combined Facial and Truncal Acne: a Multi-national, Mixed-Methods Study.

作者信息

Tan Jerry, Beissert Stefan, Cook-Bolden Fran, Chavda Rajeev, Harper Julie, Hebert Adelaide, Lain Edward, Layton Alison, Rocha Marco, Weiss Jonathan, Dréno Brigitte

机构信息

Schulich School of Medicine and Dentistry, Western University Canada, 2224 Walker Rd, Suite 300, Windsor, ON, N8W 5L7, Canada.

Department of Dermatology, University Hospital Carl Gustav Carus, TU Dresden, Fetscherstrasse 74, 01307, Dresden, Germany.

出版信息

Dermatol Ther (Heidelb). 2022 Aug;12(8):1847-1858. doi: 10.1007/s13555-022-00768-0. Epub 2022 Jul 29.

Abstract

INTRODUCTION

Half of the individuals with facial acne develop truncal acne, but the impact of combined facial and truncal acne (CA) on patients' quality of life is poorly researched.

METHODS

A 60-min interview of 30 participants with CA was conducted that formed the basis for a cross-sectional survey of 694 adolescents and adults with CA.

RESULTS

The main themes identified from the qualitative interviews among CA subjects included acceptability to self and others, social functioning and emotional wellbeing. Feelings of embarrassment, self-consciousness and low confidence were experienced often or all the time by over 50% of participants, and were more frequent in those who perceived their acne to be out of control (P = 0.003). Half of patients reported feeling stigmatised because of their CA, and 65.4% believed that others associated their truncal acne with unhealthy or unhygienic habits. Perceived stigma was associated with more feelings of embarrassment (P = 0.005), self-consciousness (P = 0.034) and low self-confidence (P = 0.017). Overall, 64% participants reported that CA interfered with daily life, 46.4% often or always avoided social interaction, 48.6% were often concerned about talking to unfamiliar people and 47.4% were uncomfortable showing affection. Further, 32% and 24.4% participants ≥ 16 years old avoided dating or having romantic/intimate relationships because of their facial and truncal acne, respectively. Social and leisure activities were more frequently negatively impacted among those with perceived uncontrolled CA than among those with controlled CA. Avoiding undressing in front of spouse/partner/friends/relatives was more commonly reported by participants with perceived uncontrolled truncal acne than by those with controlled truncal acne (90.5% versus 80.6%, P = 0.031).

CONCLUSION

CA is associated with considerable psychological morbidity, with several exacerbating (e.g. perceived stigma) and attenuating factors (e.g. acne being perceived as being under control) that should be accounted for in CA management.

摘要

引言

面部痤疮患者中有一半会出现躯干痤疮,但面部和躯干联合痤疮(CA)对患者生活质量的影响研究较少。

方法

对30名CA患者进行了60分钟的访谈,这构成了对694名青少年和成人CA患者横断面调查的基础。

结果

CA患者定性访谈中确定的主要主题包括对自己和他人的可接受性、社交功能和情绪健康。超过50%的参与者经常或一直感到尴尬、自觉和自信心不足,在那些认为自己的痤疮失控的参与者中更为频繁(P = 0.003)。一半的患者报告因CA而感到受辱,65.4%的患者认为其他人将他们的躯干痤疮与不健康或不卫生的习惯联系起来。感知到的耻辱与更多的尴尬感(P = 0.005)、自觉(P = 0.034)和低自信心(P = 0.017)相关。总体而言,64%的参与者报告CA干扰了日常生活,46.4%的人经常或总是避免社交互动,48.6%的人经常担心与不熟悉的人交谈,47.4%的人在表达爱意时感到不舒服。此外,分别有32%和24.4%的≥16岁参与者因面部和躯干痤疮而避免约会或建立浪漫/亲密关系。与痤疮得到控制的患者相比,痤疮被认为失控的患者的社交和休闲活动受到负面影响的频率更高。与躯干痤疮得到控制的参与者相比,躯干痤疮被认为失控的参与者更常报告避免在配偶/伴侣/朋友/亲戚面前脱衣服(90.5%对80.6%,P = 0.031)。

结论

CA与相当大的心理发病率相关,有几个加重因素(如感知到的耻辱)和减轻因素(如认为痤疮得到控制),在CA管理中应予以考虑。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/63b4/9357600/c8116ebda709/13555_2022_768_Fig1_HTML.jpg

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