Medical Management Centre, Department of Learning, Informatics, Management and Ethics, Karolinska Institutet, Stockholm, Sweden.
Division of Physiotherapy, School of Health Care and Social Welfare, Mälardalen University, Västerås, Sweden.
J Med Internet Res. 2022 Aug 1;24(8):e38980. doi: 10.2196/38980.
An increasing number of patients expect and want to play a greater role in their treatment and care decisions. This emphasizes the need to adopt collaborative health care practices, which implies collaboration among interprofessional health care teams and patients, their families, caregivers, and communities. In recent years, digital health technologies that support self-care and collaboration between the community and health care providers (ie, participatory health technologies) have received increasing attention. However, knowledge regarding the features of such technologies that support effective patient-professional partnerships is still limited.
This study aimed to map and assess published studies on participatory health technologies intended to support partnerships among patients, caregivers, and health care professionals in chronic care, focusing specifically on identifying the main features of these technologies.
A scoping review covering scientific publications in English between January 2008 and December 2020 was performed. We searched PubMed and Web of Science databases. Peer-reviewed qualitative, quantitative, and mixed methods studies that evaluated digital health technologies for patient-professional partnerships in chronic care settings were included. The data were charted and analyzed thematically. The PRISMA-ScR (Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews) checklist was used.
This review included 32 studies, reported in 34 papers. The topic of participatory health technologies experienced a slightly increasing trend across publication years, with most papers originating from the United States and Norway. Diabetes and cardiovascular diseases were the most common conditions addressed. Of the 32 studies, 12 (38%) evaluated the influence of participatory health technologies on partnerships, mostly with positive outcomes, although we also identified how partnership relationships and the nature of collaborative work could be challenged when the roles and expectations between users were unclear. Six common features of participatory health technologies were identified: patient-professional communication, self-monitoring, tailored self-care support, self-care education, care planning, and community forums for peer-to-peer interactions.
Our findings emphasize the importance of clarifying mutual expectations and carefully considering the implications that the introduction of participatory health technologies may have on the work of patients and health care professionals, both individually and in collaboration. A knowledge gap remains regarding the use of participatory health technologies to effectively support patient-professional partnerships in chronic care management.
越来越多的患者期望并希望在治疗和护理决策中发挥更大的作用。这强调了采用协作式医疗保健实践的必要性，这意味着需要在跨专业医疗保健团队以及患者、其家属、照护者和社区之间开展协作。近年来，支持自我护理和社区与医疗保健提供者之间协作的数字健康技术（即参与式健康技术）越来越受到关注。然而，关于支持患者与专业人员之间有效伙伴关系的此类技术的特征的知识仍然有限。
本研究旨在绘制和评估旨在支持慢性病护理中患者、照护者和医疗保健专业人员之间伙伴关系的参与式健康技术的已发表研究，重点特别关注确定这些技术的主要特征。
对 2008 年 1 月至 2020 年 12 月期间发表的英文科学文献进行了范围综述。我们搜索了 PubMed 和 Web of Science 数据库。纳入了评估慢性病护理环境中用于患者与专业人员伙伴关系的数字健康技术的同行评审定性、定量和混合方法研究。对数据进行图表绘制和主题分析。使用 PRISMA-ScR（系统评价和荟萃分析扩展的首选报告项目用于范围综述）清单。
本综述包括 32 项研究，发表在 34 篇论文中。参与式健康技术的主题在发表年份中呈略微上升趋势，大多数论文来自美国和挪威。糖尿病和心血管疾病是最常见的治疗疾病。在 32 项研究中，有 12 项（38%）评估了参与式健康技术对伙伴关系的影响，结果大多为积极，但我们也发现，当用户的角色和期望不明确时，伙伴关系和协作工作的性质可能会受到挑战。确定了参与式健康技术的 6 个共同特征：医患沟通、自我监测、量身定制的自我护理支持、自我护理教育、护理计划和社区论坛以促进患者间的互动。
我们的研究结果强调了明确相互期望的重要性，并仔细考虑参与式健康技术的引入可能对患者和医疗保健专业人员个人以及协作工作产生的影响。在使用参与式健康技术有效支持慢性病管理中的患者与专业人员伙伴关系方面，仍存在知识差距。
