• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

支持直接支持专业人员使智障人士能够参与有意义的活动:基于以人为中心的设计过程的有意义活动 4 所有人(MA4A)研究方案。

Supporting direct support professionals in enabling people with intellectual disabilities to engage in meaningful activities: protocol for the Meaningful Activities 4 All (MA4A) study based on the human-centred design process.

机构信息

Department of Rehabilitation Sciences and Physiotherapy, Ghent University, Ghent, Belgium

Health and Care, Artevelde University College, Ghent, Belgium.

出版信息

BMJ Open. 2022 Aug 17;12(8):e061736. doi: 10.1136/bmjopen-2022-061736.

DOI:10.1136/bmjopen-2022-061736
PMID:35977773
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9389101/
Abstract

INTRODUCTION

Meaningful activities (MA) have a positive impact on identity, well-being, participation and inclusion. Although people with intellectual disabilities (PID) depend on their direct support professionals (DSPs) to engage in MA, the DSPs need support which could enable them to offer more qualitative care and support.

METHODS AND ANALYSIS

To identify DSPs' needs, and to develop a tool/service, an innovative and iterative approach is developed, based on the human-centred design (HCD) process, combined with traditional qualitative and quantitative research methods. In the inspiration phase (needs analysis), in-depth interviews will be conducted in two day care centres in Flanders using an interpretative phenomenological analyses, one with a supply-driven approach and the other with a demand-driven approach, followed by a survey sent to all Flemish day care centres. In the ideation phase, the insights of phase 1 will guide a cocreation process (comprising a World Cafe, brainstorm and prototype sessions) with the DSPs, PID and other stakeholders. In the implementation phase, the solution will be tested in the two day care centres from phase 1 by means of living labs and a realist evaluation. By adopting this protocol, the functionality, quality, usability and acceptance are expected to increase. This protocol adopts all phases of the HCD process and shows the complementarity of HCD with traditional research methods. PID and the DSPs will benefit as the end result is truly grounded in their specific needs and wishes.

ETHICS AND DISSEMINATION

Ethical approval by the Ethics Committee of the University Hospital Ghent, Belgium (reference numbers: B670202042983 and PA2021-091). All participants will sign informed consent forms. Results of this study will be submitted for publication in relevant peer-reviewed journals and will be presented at relevant conferences.

摘要

简介

有意义的活动(MA)对身份认同、幸福感、参与和包容有积极影响。尽管智障人士(PID)依赖他们的直接支持专业人员(DSP)参与 MA,但 DSP 需要支持,这可以使他们提供更有质量的护理和支持。

方法和分析

为了确定 DSP 的需求,并开发一种工具/服务,将采用一种创新和迭代的方法,基于以人为中心的设计(HCD)过程,结合传统的定性和定量研究方法。在灵感阶段(需求分析),将在佛兰德斯的两个日托中心使用解释性现象学分析进行深入访谈,一个采用供应驱动方法,另一个采用需求驱动方法,然后向所有佛兰德斯日托中心发送调查。在创意阶段,第 1 阶段的见解将指导与 DSP、PID 和其他利益相关者一起进行共创过程(包括世界咖啡馆、头脑风暴和原型会议)。在实施阶段,将通过生活实验室和现实主义评估在第 1 阶段的两个日托中心测试解决方案。通过采用本方案,预计功能、质量、可用性和可接受性将提高。本方案采用了 HCD 过程的所有阶段,并展示了 HCD 与传统研究方法的互补性。PID 和 DSP 将受益,因为最终结果真正基于他们的特定需求和愿望。

伦理与传播

比利时根特大学医院伦理委员会已批准此项研究(参考编号:B670202042983 和 PA2021-091)。所有参与者将签署知情同意书。本研究的结果将提交给相关的同行评审期刊发表,并将在相关会议上展示。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/787d/9389101/dcdd9963bd81/bmjopen-2022-061736f01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/787d/9389101/dcdd9963bd81/bmjopen-2022-061736f01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/787d/9389101/dcdd9963bd81/bmjopen-2022-061736f01.jpg

相似文献

1
Supporting direct support professionals in enabling people with intellectual disabilities to engage in meaningful activities: protocol for the Meaningful Activities 4 All (MA4A) study based on the human-centred design process.支持直接支持专业人员使智障人士能够参与有意义的活动:基于以人为中心的设计过程的有意义活动 4 所有人(MA4A)研究方案。
BMJ Open. 2022 Aug 17;12(8):e061736. doi: 10.1136/bmjopen-2022-061736.
2
Improving the participation of adults with visual and severe or profound intellectual disabilities: a process evaluation of a new intervention.提高视觉障碍和严重或极重度智力残疾成年人的参与度:新干预措施的过程评估。
BMC Health Serv Res. 2020 Apr 16;20(1):319. doi: 10.1186/s12913-020-05161-1.
3
The efforts of direct support professionals to facilitate inclusion: the role of psychological determinants and work setting.直接支持专业人员促进融合的努力:心理决定因素和工作环境的作用。
J Intellect Disabil Res. 2015 Oct;59(10):970-9. doi: 10.1111/jir.12209. Epub 2015 Jul 20.
4
Intervention effects on professionals' attitudes towards the participation of adults with visual and severe or profound intellectual disabilities.干预对专业人员对成年视障和严重或极重度智力残疾人士参与态度的影响。
J Appl Res Intellect Disabil. 2021 Jan;34(1):129-139. doi: 10.1111/jar.12792. Epub 2020 Aug 13.
5
Assessing the Usability and Feasibility of Digital Assistant Tools for Direct Support Professionals: Participatory Design and Pilot-Testing.评估面向直接支持专业人员的数字助理工具的可用性和可行性:参与式设计与试点测试。
JMIR Hum Factors. 2024 Apr 25;11:e51612. doi: 10.2196/51612.
6
Technology and the environment: supportive resource or barrier for people with developmental disabilities?技术与环境:对发育障碍者而言是支持性资源还是障碍?
Nurs Clin North Am. 2003 Jun;38(2):331-49. doi: 10.1016/s0029-6465(02)00053-1.
7
Implementation of a program to support direct support professionals to promote a healthy lifestyle for people with moderate to profound intellectual disabilities.实施一项支持直接支持专业人员的计划,以促进中重度智力残疾人士的健康生活方式。
BMC Health Serv Res. 2022 Jan 2;22(1):15. doi: 10.1186/s12913-021-07389-x.
8
The future of Cochrane Neonatal.考克兰新生儿协作网的未来。
Early Hum Dev. 2020 Nov;150:105191. doi: 10.1016/j.earlhumdev.2020.105191. Epub 2020 Sep 12.
9
Comparing Perspectives Between Different Agency Structures and Support Models.比较不同代理机构结构和支持模式的观点。
Intellect Dev Disabil. 2022 Jun 1;60(3):199-211. doi: 10.1352/1934-9556-60.3.199.
10
Developing an intervention to increase REferral and uptake TO pulmonary REhabilitation in primary care in patients with chronic obstructive pulmonary disease (the REsTORE study): mixed methods study protocol.开发一项干预措施,以增加慢性阻塞性肺疾病患者在初级保健中接受肺康复转诊和参与的机会(REsTORE 研究):混合方法研究方案。
BMJ Open. 2019 Jan 21;9(1):e024806. doi: 10.1136/bmjopen-2018-024806.

本文引用的文献

1
A quality of life supports model: Six research-focused steps to evaluate the model and enhance research practices in the field of IDD.一个生活质量支持模型:六个以研究为重点的步骤,用于评估 IDD 领域的模型并增强研究实践。
Res Dev Disabil. 2021 Dec;119:104112. doi: 10.1016/j.ridd.2021.104112. Epub 2021 Oct 14.
2
A qualitative study of the needs of older adults with intellectual disabilities.一项关于智障老年人需求的定性研究。
J Appl Res Intellect Disabil. 2021 Nov;34(6):1560-1568. doi: 10.1111/jar.12900. Epub 2021 Jun 14.
3
Engagement in Meaningful Activities Among Older Adults With Disability, Dementia, and Depression.
老年人残疾、痴呆和抑郁患者参与有意义的活动。
JAMA Intern Med. 2021 Apr 1;181(4):560-562. doi: 10.1001/jamainternmed.2020.7492.
4
A New Paradigm in the Field of Intellectual and Developmental Disabilities: Characteristics and Evaluation.智力和发展障碍领域的新范式:特征与评估。
Psicothema. 2021 Feb;33(1):28-35. doi: 10.7334/psicothema2020.385.
5
Human-centered design for global health equity.以人类为中心的全球健康公平设计。
Inf Technol Dev. 2019 Sep 29;26(3):477-505. doi: 10.1080/02681102.2019.1667289.
6
Guidance on how to develop complex interventions to improve health and healthcare.关于如何制定复杂干预措施以改善健康和医疗保健的指南。
BMJ Open. 2019 Aug 15;9(8):e029954. doi: 10.1136/bmjopen-2019-029954.
7
Determinants of the quality of care relationships in long-term care - a participatory study.长期护理中护理关系质量的决定因素——一项参与性研究。
BMC Health Serv Res. 2019 Jun 14;19(1):389. doi: 10.1186/s12913-019-4195-x.
8
Living labs for health: an integrative literature review.健康生活实验室:综合文献回顾。
Eur J Public Health. 2020 Feb 1;30(1):55-63. doi: 10.1093/eurpub/ckz105.
9
The impact of behavioural skills training on the knowledge, skills and well-being of front line staff in the intellectual disability sector: a clustered randomised control trial.行为技能训练对智障领域一线工作人员知识、技能和福祉的影响:一项整群随机对照试验。
J Intellect Disabil Res. 2019 Nov;63(11):1291-1304. doi: 10.1111/jir.12630. Epub 2019 May 20.
10
Effect of deinstitutionalisation on quality of life for adults with intellectual disabilities: a systematic review.去机构化对智力残疾成年人生活质量的影响:系统评价。
BMJ Open. 2019 Apr 25;9(4):e025735. doi: 10.1136/bmjopen-2018-025735.