Academic Department of Vascular Surgery, Section of Vascular Risk and Surgery, School of Cardiovascular Medicine and Science, Guy's and Saint Thomas' Hospital, King's College London, London, UK; Academic Section of Vascular Surgery, Department of Surgery and Cancer and Department of Vascular Surgery, Imperial College Healthcare NHS Trust, Imperial College London, London, UK.
Department of Medicine: Thrombosis and Haemostasis, Leiden University Medical Center, Leiden University, Leiden, Netherlands.
Lancet Haematol. 2022 Sep;9(9):e698-e706. doi: 10.1016/S2352-3026(22)00215-0.
The International Consortium for Health Outcomes Measurement assembled an international working group of venous thromboembolism experts and patient representatives to develop a standardised minimum set of outcomes and outcome measurements for integration into clinical practice and potentially research to support clinical decision making and benchmarking of quality of care. 15 core outcomes important to patients and health-care professionals were selected and categorised into four domains: patient-reported outcomes, long term consequences of the disease, disease-specific complications, and treatment-related complications. The outcomes and outcome measures were designed to apply to all patients with venous thromboembolism aged 16 years or older. A measurement tool package was selected for inclusion in the core standard set, with a minimum number of items to be measured at predefined timepoints, which capture all core outcomes. Additional measures can be introduced to the user by a cascade opt-in system that allows for further assessment if required. This set of outcomes and measurement tools will facilitate the implementation of the use of patient-centred outcomes in daily practice.
国际健康结局测量联合会召集了一组静脉血栓栓塞症专家和患者代表组成的国际工作组，旨在制定一套标准化的最小结局集和结局测量方法，以便整合到临床实践中，并可能用于研究，以支持临床决策和护理质量的基准比较。选择了 15 项对患者和医疗保健专业人员重要的核心结局，并将其分为四个领域：患者报告的结局、疾病的长期后果、疾病特异性并发症和治疗相关并发症。这些结局和结局测量旨在适用于所有年龄在 16 岁及以上的静脉血栓栓塞症患者。选择了一套测量工具包，纳入核心标准集，以在预设时间点测量最少数量的项目，从而涵盖所有核心结局。如果需要，通过级联选择加入系统，可以向用户引入其他措施进行进一步评估。这组结局和测量工具将有助于在日常实践中实施以患者为中心的结局。
