Queensland Bioethics Centre, 95359Australian Catholic University, Brisbane, Australia.
School of Population and Global Health, University of Melbourne, Melbourne, Australia.
J Empir Res Hum Res Ethics. 2022 Dec;17(5):573-586. doi: 10.1177/15562646221118127. Epub 2022 Sep 7.
Given the unprecedented scale of digital surveillance in the COVID-19 pandemic, designing and implementing digital technologies in ways that are equitable is critical now and in future epidemics and pandemics. Yet to date there has been very limited consideration about what is necessary to promote their equitable design and implementation. In this study, literature relating to the use of digital surveillance technologies during epidemics and pandemics was collected and thematically analyzed for ethical norms and concerns related to equity and social justice. Eleven norms are reported, including procedural fairness and inclusive approaches to design and implementation, designing to rectify or avoid exacerbating inequities, and fair access. Identified concerns relate to digital divides, stigma and discrimination, disparate risk of harm, and unfair design processes. We conclude by considering what dimensions of social justice the norms promote and whether identified concerns can be addressed by building the identified norms into technology design and implementation practice.
鉴于 COVID-19 大流行期间前所未有的数字监控规模,现在和未来的传染病和大流行中,以公平的方式设计和实施数字技术至关重要。然而,迄今为止,对于促进其公平设计和实施所需的条件,考虑得非常有限。在这项研究中,收集了与传染病和大流行期间使用数字监控技术有关的文献,并对与公平和社会正义相关的伦理规范和问题进行了主题分析。报告了 11 项规范,包括程序公平和设计与实施的包容性方法、设计以纠正或避免加剧不平等以及公平获取。确定的问题涉及数字鸿沟、污名化和歧视、不同的伤害风险以及不公平的设计流程。最后,我们考虑了规范所促进的社会正义的哪些方面,以及通过将确定的规范纳入技术设计和实施实践,是否可以解决确定的问题。