Bootsma Tom I, Schellekens Melanie P J, van Woezik Rosalie A M, Slatman Jenny, van der Lee Marije L
Helen Dowling Institute, Center for Psycho-Oncology, Scientific Research Department, Bilthoven, the Netherlands.
Tilburg University, School of Humanities and Digital Sciences, Department of Culture Studies, Tilburg, the Netherlands.
Internet Interv. 2022 Aug 24;30:100568. doi: 10.1016/j.invent.2022.100568. eCollection 2022 Dec.
Chronic cancer-related fatigue (CCRF) is a complex multidimensional problem warranting person-centered care. Providing patients and therapists personalized feedback based on network analysis applied to ecological momentary assessment (EMA) data could facilitate case conceptualization in psycho-oncological care. The aim was to explore patients' and therapists' experiences of using an EMA app and personalized feedback based on network theory to aid case conceptualization in psycho-oncological care.
A n = 5 proof-of-concept study was implemented in routine psycho-oncological care. We purposively selected adult cancer patients suffering from severe CCRF who were on the waitlist for psycho-oncological care. During a 3-week period participants filled out the EMA app (fatigue, mood, activity, responding, and context) five times a day. Participants received a descriptive and network feedback report, which they reflected upon during the first therapy sessions. Thematic analysis was used to analyze user experiences.
Patients experienced that filling out the app, as well as receiving descriptive and network-based personalized feedback provided them with insight into their CCRF. Although therapists experienced the discussion of network feedback as challenging, it facilitated the case conceptualization.
Using EMA during waitlist for psychological care seemed feasible. Patients experienced beneficial effects from filling out the EMA app and talking over the personalized feedback reports, which in turn aided case conceptualization and personalized care. Based on this evaluation, an improved version of the app and a therapist training for providing network feedback is developed for implementation in psycho-oncological care.
慢性癌症相关疲劳（CCRF）是一个复杂的多维度问题，需要以患者为中心的护理。基于应用于生态瞬时评估（EMA）数据的网络分析为患者和治疗师提供个性化反馈，有助于心理肿瘤护理中的病例概念化。目的是探索患者和治疗师使用EMA应用程序以及基于网络理论的个性化反馈以辅助心理肿瘤护理中病例概念化的体验。
在常规心理肿瘤护理中实施了一项n = 5的概念验证研究。我们有目的地选择了患有严重CCRF且在心理肿瘤护理等候名单上的成年癌症患者。在为期3周的时间里，参与者每天填写5次EMA应用程序（疲劳、情绪、活动、反应和背景）。参与者收到一份描述性和基于网络的反馈报告，并在首次治疗会议期间对其进行反思。采用主题分析法分析用户体验。
患者体验到填写应用程序以及收到描述性和基于网络的个性化反馈使他们对自己的CCRF有了深入了解。尽管治疗师认为讨论网络反馈具有挑战性，但它有助于病例概念化。
在心理护理等候名单期间使用EMA似乎是可行的。患者从填写EMA应用程序和讨论个性化反馈报告中体验到了有益效果，这反过来又有助于病例概念化和个性化护理。基于此评估，开发了该应用程序的改进版本以及用于提供网络反馈的治疗师培训，以便在心理肿瘤护理中实施。
