Sage Rayna, Standley Krys, Mashinchi Genna M
The Rural Institute for Inclusive Communities, University of Montana, Missoula, MT, United States.
Front Rehabil Sci. 2022 Apr 25;3:876038. doi: 10.3389/fresc.2022.876038. eCollection 2022.
It is very difficult to find and keep workers to provide home-based care for disabled people, especially in rural places. There is a tension between the rights of disabled people and the rights of home-based personal care workers. In this brief review, we explore the intersections of historical and social forces that shaped federal-level policies for both disability rights and the rights of personal care workers, as well as the current state of the policies. This paper provides a narrow focus on federal policies relevant to both groups, while also considering how the urbancentric nature of advocacy and policymaking has failed to address important issues experienced by rural people. In addition to briefly reviewing relevant federal policies, we also explore sources of support and resistance and how urbanormativity, ableism, and sexism intersect to influence how the needs of people with disabilities and their personal care workers are conceptualized and addressed. We conclude with recommendations for how to better address the needs of rural people with disabilities using home-based personal care services and the workers who provide them.
很难找到并留住为残疾人提供居家护理的工作人员，尤其是在农村地区。残疾人的权利与居家个人护理工作者的权利之间存在矛盾。在这篇简短的综述中，我们探讨了塑造残疾权利和个人护理工作者权利的联邦层面政策的历史和社会力量的交叉点，以及这些政策的现状。本文将重点狭窄地聚焦于与这两个群体相关的联邦政策，同时也考虑到倡导和决策制定以城市为中心的性质如何未能解决农村居民所面临的重要问题。除了简要回顾相关联邦政策外，我们还探讨了支持和阻力的来源，以及城市规范、对残障人士的歧视和性别歧视如何相互交织，影响对残疾人士及其个人护理工作者需求的概念化和处理方式。我们最后提出了一些建议，说明如何利用居家个人护理服务以及提供这些服务的工作人员，更好地满足农村残疾人士的需求。
