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系统性红斑狼疮患者健康结局的结构性和卫生系统决定因素:理解健康差异的潜在机制。

Structural and health system determinants of health outcomes in systemic lupus erythematosus: Understanding the mechanisms underlying health disparities.

机构信息

Department of Behavioral, Social, and Health Education Sciences, Rollins School of Public Health, Emory University, Atlanta, GA, United States.

Division of Rheumatology, Department of Medicine, Washington University School of Medicine, Saint Louis, MO, United States.

出版信息

Front Public Health. 2022 Sep 30;10:980731. doi: 10.3389/fpubh.2022.980731. eCollection 2022.

DOI:10.3389/fpubh.2022.980731
PMID:36249243
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9563342/
Abstract

Chronic diseases are increasingly responsible for the burden of health outcomes across the world. However, there is also increasing recognition that patterns of chronic disease outcomes (e.g., mortality, quality of life, etc.) have inequities across race, gender, and socioeconomic groups that cannot be solely attributed to these determinants. There is a need for an organizing framework which centers fundamental causes of health disparities that may better guide future work in centering these mechanisms and moving beyond acknowledgment of health disparities. In this paper, we synthesize several concepts from health disparities literature into a conceptual framework for understanding the interplay of patients' lived experiences, the health care system and structural determinants. Our framework suggests that (1) structural factors influence the health care system, the patient, the health care provider, and the provider-patient relationship through process of subordination and (2) that structurally competent actions are critical to reducing health inequities. The addition of subordination to theoretical frameworks involving health equity and social determinants of health, along with engagement with concepts of structural competency suggest several systems level changes to improve health outcomes.

摘要

慢性病在全球范围内对健康结果的负担负有越来越大的责任。然而,人们也越来越认识到,慢性病结果(例如死亡率、生活质量等)的模式在种族、性别和社会经济群体之间存在不平等,而这些不平等不能仅仅归因于这些决定因素。需要有一个组织框架,将健康差距的根本原因放在中心位置,这可能会更好地指导未来的工作,将这些机制放在中心位置,并超越对健康差距的认识。在本文中,我们将健康差距文献中的几个概念综合到一个理解患者生活体验、医疗保健系统和结构决定因素相互作用的概念框架中。我们的框架表明:(1)结构因素通过从属过程影响医疗保健系统、患者、医疗保健提供者以及提供者-患者关系;(2) 结构能力的行动对于减少健康不平等至关重要。将从属关系加入到涉及健康公平和健康的社会决定因素的理论框架中,并结合结构能力的概念,表明需要进行一些系统层面的改变,以改善健康结果。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b750/9563342/080bb53ad477/fpubh-10-980731-g0001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b750/9563342/080bb53ad477/fpubh-10-980731-g0001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b750/9563342/080bb53ad477/fpubh-10-980731-g0001.jpg

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Support Methodologies for African American Women With Lupus - Comparing Three Methods' Effects on Patient Activation and Coping.针对患有狼疮的非裔美国女性的支持方法——比较三种方法对患者激活和应对的影响。
Front Psychol. 2021 Oct 5;12:734390. doi: 10.3389/fpsyg.2021.734390. eCollection 2021.
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Medication decision-making and adherence in lupus: patient-physician discordance and the impact of previous 'adverse medical experiences'.
不良健康社会决定因素对狼疮肾炎结局的乘法影响:荟萃分析和系统评价。
Arthritis Care Res (Hoboken). 2024 Sep;76(9):1232-1245. doi: 10.1002/acr.25359. Epub 2024 Jun 23.
狼疮患者的药物决策和依从性:医患分歧以及先前“不良医疗经历”的影响。
Rheumatology (Oxford). 2022 Apr 11;61(4):1417-1429. doi: 10.1093/rheumatology/keab534.
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Disparities in Lupus and Lupus Nephritis Care and Outcomes Among US Medicaid Beneficiaries.美国医疗补助受益人群中狼疮和狼疮性肾炎护理及结局的差异。
Rheum Dis Clin North Am. 2021 Feb;47(1):41-53. doi: 10.1016/j.rdc.2020.09.004. Epub 2020 Oct 29.
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