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西班牙语裔/拉丁裔患者的临终关怀和预先指示:执业肿瘤医生面临的挑战与解决方案。

End-of-Life Care and Advanced Directives in Hispanic/Latinx Patients: Challenges and Solutions for the Practicing Oncologist.

机构信息

Hematology-Oncology Department Instituto Nacional de Ciencias Médicas y Nutrición Salvador Zubirán, Mexico City, Mexico.

Department of Geriatrics, Instituto Nacional de Ciencias Médicas y Nutrición Salvador Zubiran, Mexico City, Mexico.

出版信息

Oncologist. 2022 Dec 9;27(12):1074-1080. doi: 10.1093/oncolo/oyac211.

Abstract

Advanced end-of-life care (EOL) comprises a group of strategies to provide comfort to patients at the end of life. These are associated with better quality of life, better satisfaction, and a lower rate of hospitalizations and aggressive medical treatment. Advanced EOL care, including advanced directives completion and hospice enrollment, is suboptimal among Hispanic/Latinx patients with cancer due to personal, socio-cultural, financial, and health system-related barriers, as well as due to a lack of studies specifically designed for this population. In addition, the extrapolation of programs that increase participation in EOL for non-white Hispanics may not work appropriately for Hispanic/Latinx patients and lead to overall lower satisfaction and enrollment in EOL care. This review will provide the practicing oncologist with the tools to address EOL in the Hispanic/Latinx population. Some promising strategies to address the EOL care disparities in Latinx/Hispanic patients have been culturally tailored patient navigation programs, geriatric assessment-guided multidisciplinary interventions, counseling sessions, and educational interventions. Through these strategies, we encourage oncologists to take advantage of every clinical setting to discuss EOL care. Treating physicians can engage family members in caring for their loved ones while practicing cultural humility and respecting cultural preferences, incorporating policies to foster treatment for the underserved migrant population, and providing patients with validated Spanish language tools.

摘要

晚期生命关怀(EOL)包括一组旨在为生命末期患者提供舒适的策略。这些策略与更高的生活质量、更高的满意度以及更低的住院率和更激进的医疗治疗相关。由于个人、社会文化、财务和医疗系统相关的障碍,以及缺乏专门针对这一人群的研究,拉丁裔/西班牙裔癌症患者的高级 EOL 护理,包括高级指令的完成和临终关怀的参与,并不理想。此外,为非白种西班牙裔增加 EOL 参与度的项目的推断可能并不适用于拉丁裔/西班牙裔患者,并且会导致整体满意度和 EOL 护理的参与度降低。这篇综述将为执业肿瘤学家提供在拉丁裔/西班牙裔人群中处理 EOL 的工具。一些有前途的策略来解决拉丁裔/西班牙裔患者的 EOL 护理差距包括文化适应的患者导航计划、老年评估指导的多学科干预、咨询会议和教育干预。通过这些策略,我们鼓励肿瘤学家利用每一个临床环境来讨论 EOL 护理。治疗医生可以让家属参与照顾他们的亲人,同时保持文化谦逊并尊重文化偏好,制定政策来促进为服务不足的移民人口提供治疗,并为患者提供经过验证的西班牙语工具。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4f27/10259759/8c614f8a9a8d/oyac211_fig1.jpg

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