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特发性颅内高压患者的生活质量及新冠疫情的影响

Quality of Life in Patients with Idiopathic Intracranial Hypertension and the Impact of the COVID-19 Pandemic.

作者信息

Çelebisoy Neşe, Kısabay Ak Ayşın, Özdemir Hüseyin Nezih, Gökçay Figen, Eser Erhan

机构信息

Department of Neurology, Ege University, Izmir, Turkey.

Department of Neurology, Celal Bayar University, Manisa, Turkey.

出版信息

Neuroophthalmology. 2022 Mar 15;46(5):283-289. doi: 10.1080/01658107.2022.2038639. eCollection 2022.

Abstract

The COVID-19 pandemic became a challenge to maintain care for patients with idiopathic intracranial hypertension (IIH). We aimed to find out how they were affected during lockdown. Thirty IIH patients admitted to hospital during the COVID-19 pandemic were studied. Their demographic and neuro-ophthalmological findings were evaluated. The World Health Organization - Five Well-Being Index (WHO-5), the EUROHIS Quality of Life (QOL) 8-item index, National Eye Institute Visual Functioning Questionnaire (NEI-VFQ-25), Headache Impact Test (HIT-6), and COVID-19 Fear Scale were used to assess QOL and pandemic-associated fear. Thirty age, sex, and body mass index matched volunteers constituted the control group. Apart from the COVID-19 Fear Scale and colour vision subscale of the NEI-VFQ-25, all scale scores were worse in IIH patients than in healthy control subjects. Patients with severe visual field defects had higher HIT-6 scores (p = .036). Both vision-specific and overall QOL was reduced in patients with IIH. Headache severity and disability were more prominent in patients with severe visual loss. Fear caused by the COVID pandemic was not different in IIH patients than in healthy control subjects.

摘要

新型冠状病毒肺炎(COVID-19)大流行对维持特发性颅内高压(IIH)患者的治疗构成了挑战。我们旨在了解他们在封锁期间受到了怎样的影响。对30例在COVID-19大流行期间入院的IIH患者进行了研究。评估了他们的人口统计学和神经眼科检查结果。使用世界卫生组织-五福指数(WHO-5)、欧洲健康状况调查生活质量(QOL)8项指数、美国国立眼科研究所视觉功能问卷(NEI-VFQ-25)、头痛影响测试(HIT-6)和COVID-19恐惧量表来评估生活质量和与大流行相关的恐惧。30名年龄、性别和体重指数匹配的志愿者组成了对照组。除了COVID-19恐惧量表和NEI-VFQ-25的色觉子量表外,IIH患者的所有量表得分均低于健康对照者。有严重视野缺损的患者HIT-6得分更高(p = 0.036)。IIH患者的视力特异性和总体生活质量均降低。严重视力丧失的患者头痛严重程度和残疾情况更为突出。IIH患者因COVID大流行引起的恐惧与健康对照者没有差异。

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