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自我管理型手机应用对乳腺癌患者生活质量的影响:发展中国家的一项研究。

Effectiveness of a self-management mobile app on the quality of life of women with breast cancer: a study in a developing country.

机构信息

Department of Health Information Technology, School of Allied Medical Sciences, Urmia University of Medical Sciences, Urmia, Iran.

Department of Health Information Management and Technology, School of Allied Medical Sciences, Kashan University of Medical Sciences, Kashan, Iran.

出版信息

BMC Womens Health. 2022 Nov 11;22(1):446. doi: 10.1186/s12905-022-02020-5.

DOI:10.1186/s12905-022-02020-5
PMID:36368982
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9652046/
Abstract

BACKGROUND

Self-management involves taking responsibility for personal health and taking the initiative to do so. This can be accomplished by learning information and skills that will help consider the difficulties may encounter during and after cancer treatment. With this perspective, we have aimed to develop a self-management mobile app for women with breast cancer in Iran and evaluate its impact on the quality of life of patients.

METHOD

This study is a methodological study in 2021. We developed the app during three phases. The first phase aimed at identifying educational content and designing user experience, the second phase aimed at developing and implementing the app, and the third phase aimed at evaluating pre-and post-implementation.

RESULT

In this study, an Android app for self-management women with breast cancer was developed. According to the results of the pre-and post-implementations among the most significant changes were in the quality of life level, highest respectively: social avoidance (Pre: 6.41-Post: 3.56), negative feelings (Pre: 5.93 - Post: 3.40), sexual function (Pre: 6.80 - Post: 5.04), sexual interest (Pre: 6.41 - Post: 4.75) and pain (Pre: 6.37 - Post: 4.97). And least the changes respectively: distress-family (Pre: 7 - Post: 7), distress-recurrence (Pre: 4.49 - Post: 4.38), benefits (Pre: 2.47 - Post: 3.12), appearance (Pre: 4.10 - Post: 3.32). Also, we calculated the usability evaluation of this app with the system usability scale (SUS); the overall rating score was 83/100, an excellent level (> 80.3), and a grade A.

CONCLUSION

The study shows that a breast cancer self-management app can support and improve the quality of life of women with breast cancer. We conducted this study to show that by developing a self-management app, women with breast cancer can improve their quality of life, - by increasing their self-management skills.

摘要

背景

自我管理涉及个人健康责任和主动参与,这可以通过学习信息和技能来实现,这些信息和技能将有助于考虑癌症治疗期间和之后可能遇到的困难。基于这一观点,我们旨在为伊朗的乳腺癌女性开发一款自我管理移动应用程序,并评估其对患者生活质量的影响。

方法

这是 2021 年的一项方法学研究。我们分三个阶段开发了该应用程序。第一阶段旨在确定教育内容和设计用户体验,第二阶段旨在开发和实施应用程序,第三阶段旨在评估实施前后。

结果

在这项研究中,我们开发了一款用于乳腺癌女性自我管理的 Android 应用程序。根据实施前后的结果,生活质量水平发生了最大的变化,分别为:社交回避(实施前:6.41-实施后:3.56)、负面感受(实施前:5.93-实施后:3.40)、性功能(实施前:6.80-实施后:5.04)、性兴趣(实施前:6.41-实施后:4.75)和疼痛(实施前:6.37-实施后:4.97)。变化最小的分别是:困扰家庭(实施前:7-实施后:7)、困扰复发(实施前:4.49-实施后:4.38)、获益(实施前:2.47-实施后:3.12)、外貌(实施前:4.10-实施后:3.32)。此外,我们还使用系统可用性量表(SUS)对该应用程序的可用性进行了评估;总评分为 83/100,属于优秀水平(>80.3),等级为 A。

结论

该研究表明,乳腺癌自我管理应用程序可以支持和提高乳腺癌女性的生活质量。我们进行这项研究是为了表明,通过开发自我管理应用程序,乳腺癌女性可以提高生活质量,提高自我管理技能。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7611/9652789/d44b845f6304/12905_2022_2020_Fig4_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7611/9652789/44019d243912/12905_2022_2020_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7611/9652789/91dddaef8d62/12905_2022_2020_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7611/9652789/9256eda869b5/12905_2022_2020_Fig3_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7611/9652789/d44b845f6304/12905_2022_2020_Fig4_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7611/9652789/44019d243912/12905_2022_2020_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7611/9652789/91dddaef8d62/12905_2022_2020_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7611/9652789/9256eda869b5/12905_2022_2020_Fig3_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7611/9652789/d44b845f6304/12905_2022_2020_Fig4_HTML.jpg

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