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语言重要吗?自闭症研究中身份优先语言与个人优先语言的使用:对维万蒂的回应。

Does Language Matter? Identity-First Versus Person-First Language Use in Autism Research: A Response to Vivanti.

作者信息

Botha Monique, Hanlon Jacqueline, Williams Gemma Louise

机构信息

School of Psychology, University of Surrey, Stag Hill Campus, Guildford, Surrey, GU2 7XH, UK.

Division of Psychology, Faculty of Natural Sciences, University of Stirling, Stirling, UK.

出版信息

J Autism Dev Disord. 2023 Feb;53(2):870-878. doi: 10.1007/s10803-020-04858-w. Epub 2021 Jan 20.

DOI:10.1007/s10803-020-04858-w
PMID:33474662
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7817071/
Abstract

In response to Vivanti's 'Ask The Editor…' paper [Journal of Autism and Developmental Disorders, 50(2), 691-693], we argue that the use of language in autism research has material consequences for autistic people including stigmatisation, dehumanisation, and violence. Further, that the debate in the use of person-first language versus identity-first language should centre first and foremost on the needs, autonomy, and rights of autistic people, so in to preserve their rights to self-determination. Lastly, we provide directions for future research.

摘要

针对维万蒂的“问编辑……”论文[《自闭症与发育障碍杂志》,50(2),691 - 693],我们认为自闭症研究中语言的使用对自闭症患者会产生实质性影响,包括污名化、非人化和暴力。此外,关于使用以人为本的语言与身份优先语言的辩论应首先围绕自闭症患者的需求、自主性和权利展开,以便维护他们的自决权。最后,我们为未来的研究提供了方向。

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本文引用的文献

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Autism Adulthood. 2021 Mar 1;3(1):18-29. doi: 10.1089/aut.2020.0014. Epub 2021 Mar 18.
2
Creating Accessible Survey Instruments for Use with Autistic Adults and People with Intellectual Disability: Lessons Learned and Recommendations.为自闭症成年人和智障人士创建可使用的调查工具:经验教训与建议。
Autism Adulthood. 2020 Mar 1;2(1):61-76. doi: 10.1089/aut.2019.0074. Epub 2020 Mar 11.
3
Autism Spectrum Disorder and Post-Traumatic Stress Disorder: An unexplored co-occurrence of conditions.自闭症谱系障碍和创伤后应激障碍:一种未被探索的共病情况。
Autism. 2020 May;24(4):884-898. doi: 10.1177/1362361320912143. Epub 2020 Apr 3.
4
Guidelines for conducting research studies with the autism community.与自闭症群体开展研究的指南。
Autism Policy Pract. 2019 Sep 9;2(1 A new beginning):29-45.
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