Trauma & Orthopaedics, Leicester General Hospital, Leicester, UK
Trauma & Orthopaedics, University of Leicester, Leicester, UK.
BMJ Open. 2022 Nov 22;12(11):e062177. doi: 10.1136/bmjopen-2022-062177.
To undertake a UK-based James Lind Alliance (JLA) Priority Setting Partnership for elbow conditions and be representative of the views of patients, carers and healthcare professionals (HCPs).
This was a national collaborative study organised through the British Elbow and Shoulder Society.
Adult patients, carers and HCPs who have managed or experienced elbow conditions, their carers and HCPs in the UK involved in managing of elbow conditions.
The rigorous JLA priority setting methodology was followed. Electronic and paper scoping surveys were distributed to identify potential research priority questions (RPQs). Initial responses were reviewed and a literature search was performed to cross-check categorised questions. Those questions already sufficiently answered were excluded and the remaining questions were ranked in a second survey according to priority for future elbow conditions research. Using the JLA methodology, responses from HCP and patients were combined to create a list of the top 18 questions. These were further reviewed in a dedicated multistakeholder workshop where the top 10 RPQs were agreed by consensus.
The process was completed over 24 months. The initial survey resulted in 467 questions from 165 respondents (73% HCPs and 27% patients/carers). These questions were reviewed and combined into 46 summary topics comprising: tendinopathy, distal biceps pathology, arthritis, stiffness, trauma, arthroplasty and cubital tunnel syndrome. The second (interim prioritisation) survey had 250 respondents (72% HCP and 28% patients/carers). The top 18 ranked questions from this survey were taken to the final workshop where a consensus was reached on the top 10 RPQs.
The top 10 RPQs highlight areas of importance that currently lack sufficient evidence to guide diagnosis, treatment and rehabilitation of elbow conditions. This collaborative process will guide researchers and funders regarding the topics that should receive most future attention and benefit patients and HCPs.
开展基于英国詹姆斯林德联盟（JLA）的肘关节疾病优先事项设定伙伴关系研究，并能代表患者、照顾者和医疗保健专业人员（HCP）的观点。
这是一项通过英国肘部和肩部学会组织的全国性合作研究。
在英国管理或经历过肘部疾病的成年患者、照顾者和 HCP，他们的照顾者和参与肘部疾病管理的 HCP。
遵循严格的 JLA 优先事项设定方法。电子和纸质范围调查被分发以确定潜在的研究优先问题（RPQ）。对初始回复进行审查，并进行文献检索以交叉检查分类问题。已充分回答的问题被排除，其余问题根据未来肘部疾病研究的优先顺序在第二次调查中进行排名。使用 JLA 方法，将 HCP 和患者的回复结合起来，列出前 18 个问题。在专门的多利益相关者研讨会上对这些问题进行了进一步审查，会上通过共识确定了前 10 个 RPQ。
该过程在 24 个月内完成。初步调查从 165 名受访者（73%为 HCP，27%为患者/照顾者）中产生了 467 个问题。这些问题经过审查并合并为 46 个摘要主题，包括：腱鞘炎、肱二头肌远端病变、关节炎、僵硬、创伤、关节置换和肘管综合征。第二次（临时优先排序）调查有 250 名受访者（72%为 HCP，28%为患者/照顾者）。从该调查中得出的前 18 个排名问题被带到最终研讨会，会上就前 10 个 RPQ 达成共识。
前 10 个 RPQ 突出了目前缺乏足够证据来指导肘部疾病诊断、治疗和康复的重要领域。这一协作过程将指导研究人员和资助者关注应获得最多未来关注的主题，并使患者和 HCP 受益。
