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一项教育穆斯林美国人了解生命末期医疗保健中伊斯兰教生物伦理观点的试点效果研究。

A Pilot Efficacy Trial to Educate Muslim Americans about the Islamic Bioethical Perspectives in End-of-Life Healthcare.

机构信息

Section of General Internal Medicine, Department of Medicine, University of Chicago Medical Center, 5841 S. Maryland Ave., MC2007, Chicago, IL, 60637, USA.

Department of Women and Children's Health, Uppsala University, Uppsala, Sweden.

出版信息

J Immigr Minor Health. 2024 Feb;26(1):133-139. doi: 10.1007/s10903-023-01541-x. Epub 2023 Sep 4.

Abstract

In the US, end-of-life health care (EOLHC) is often intensive and invasive, and at times may involve care that is inconsistent with patient values. US Muslims may not receive appropriate religious support, experience uncertainty around end-of-life decision-making, and under-utilize palliative and hospice care. As technological advancements and treatment options rise in EOLHC, Muslim American patients and their families need to understand more about the treatment options that are consistent with their beliefs. The objective of this study was to determine the efficacy of a pilot mosque-based educational workshop focused on increasing Muslim Americans' religious bioethics knowledge about end-of-life healthcare. Intervention sites were four mosques with racially and ethnically diverse members, two in the Chicago metropolitan area and two in the Washington, D.C. area. Eligible participants were self-reported Muslims, aged 18 years or older, who were proficient in English. The intervention included a pre and post-test survey and a workshop focused on the Islamic bioethical perspectives on EOLHC. Knowledge was measured with six true-false questions. Baseline and post-intervention scores were analyzed by McNemar's test and bivariate correlation. Overall, the analysis showed a significant improvement in post-intervention participant knowledge. There was increased knowledge of Islamic bioethical views on the moral status of seeking healthcare, brain death controversies, and religious perspectives on withholding or withdrawing life support near the end of life. Our pilot intervention successfully increased participant knowledge and underscores the need to improve the Muslim community's knowledge about the bioethical dimensions of EOLHC.

摘要

在美国,临终关怀医疗(EOLHC)通常是密集和侵入性的,有时可能涉及与患者价值观不一致的护理。美国穆斯林可能无法获得适当的宗教支持,在临终决策方面感到不确定,并且对姑息治疗和临终关怀的利用不足。随着 EOLHC 中的技术进步和治疗选择的增加,穆斯林美国患者及其家属需要更多地了解符合其信仰的治疗选择。本研究的目的是确定基于清真寺的教育研讨会在增加穆斯林美国人对临终关怀医疗的宗教生物伦理知识方面的效果。干预点是四个拥有不同种族和族裔成员的清真寺,两个在芝加哥大都市区,两个在华盛顿特区。合格的参与者是自我报告的穆斯林,年龄在 18 岁或以上,并且精通英语。干预措施包括预测试和后测试调查以及一个专注于 EOLHC 伊斯兰生物伦理观点的研讨会。知识是通过六个真假问题来衡量的。通过 McNemar 检验和双变量相关性分析了基线和干预后的得分。总体而言,分析显示干预后参与者的知识有了显著提高。参与者对寻求医疗保健的道德地位、脑死亡争议以及宗教对生命支持的终止或撤回的观点等伊斯兰生物伦理观点的知识有所增加。我们的试点干预成功地提高了参与者的知识,强调需要提高穆斯林社区对 EOLHC 生物伦理维度的认识。

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