Health Services Research and Administration Department, College of Public Health, University of Nebraska Medical Center, Omaha, NE, United States.
School of Medicine Greenville, University of South Carolina, Greenville, SC, United States.
JMIR Mhealth Uhealth. 2022 Dec 5;10(12):e39881. doi: 10.2196/39881.
Rheumatoid arthritis (RA) is a highly dynamic and individualized disease in terms of its patterns of symptomatic flare-ups and periods of remission. Patient-centered care (PCC) aligns patients' lifestyle goals with their preferences for managing symptoms and side effects through the selection of therapies appropriate for disease management. Mobile health (mHealth) apps have the potential to engage and activate patients in PCC. mHealth apps can provide features that increase disease knowledge, collect patient-generated health indicators and behavioral metrics, and highlight goals for disease management. However, little evidence-based guidance exists as to which apps contain functionality essential for supporting the delivery of PCC.
The objective of this study was to evaluate the patient-centeredness of United States-based rheumatoid arthritis mobile apps in terms of patient engagement and activation.
A search of mobile apps on 2 major United States app stores (Apple App Store and Google Play) was conducted from June 2020 to July 2021 to identify apps designed for use by patients with RA by adapting the PRISMA (Preferred Reporting Items for Systematic Reviews and Meta-analyses) guidelines for mobile health app screening based on the literature. Reviewers conducted a content analysis of mobile app features to evaluate their functionality for patient engagement and activation. Engagement and activation were assessed using the Mobile Application Rating Scale (MARS) and social cognitive theory, respectively. Apps were ranked by their ability to facilitate PCC care along 2 dimensions: engagement and activation.
A total of 202 mobile apps were initially identified, and 20 remained after screening. Two apps emerged with the greatest ability to facilitate PCC. Both apps were scored as having acceptable or good patient engagement according to the MARS. These 2 apps also had high patient activation according to social cognitive theory, with many features within those apps representing theoretical constructs such as knowledge, perceived self-efficacy, and expectations about outcomes that support behavioral management of RA.
We found very few mobile apps available within the United States that have functionality that both engages and activates the patient to facilitate PCC. As the prevalence of mobile apps expands, the design of mobile apps needs to integrate patients to ensure that their functionality promotes engagement and activation. More research is needed to understand how mobile app use impacts patient engagement and activation, and ultimately, treatment decisions and disease trajectory.
类风湿关节炎(RA)在症状发作和缓解期的模式上具有高度动态和个体化的特点。以患者为中心的护理(PCC)通过选择适合疾病管理的治疗方法,将患者的生活方式目标与他们对管理症状和副作用的偏好相匹配。移动医疗(mHealth)应用程序有可能使患者参与并激活以实现 PCC。mHealth 应用程序可以提供增加疾病知识、收集患者生成的健康指标和行为指标以及突出疾病管理目标的功能。然而,几乎没有基于证据的指导来确定哪些应用程序包含支持提供 PCC 的必要功能。
本研究旨在评估基于美国的类风湿关节炎移动应用程序在患者参与和激活方面的以患者为中心程度。
根据文献,采用 PRISMA(系统评价和荟萃分析的首选报告项目)指南改编的移动健康应用程序筛选标准,对 2 个主要美国应用程序商店(Apple App Store 和 Google Play)上的移动应用程序进行了搜索,以确定专为 RA 患者设计的应用程序。审查员对移动应用程序功能进行了内容分析,以评估其促进患者参与和激活的功能。使用移动应用程序评级量表(MARS)和社会认知理论分别评估参与度和激活度。根据促进 PCC 护理的能力对应用程序进行排名,有两个维度:参与度和激活度。
最初确定了 202 个移动应用程序,筛选后保留了 20 个。有 2 个应用程序具有最大的促进 PCC 的能力。根据 MARS,这两个应用程序的患者参与度被评为可接受或良好。根据社会认知理论,这两个应用程序也具有较高的患者激活度,这些应用程序中的许多功能都代表了知识、感知自我效能和对支持 RA 行为管理结果的期望等理论结构。
我们发现,在美国,很少有具有既能吸引患者又能激活患者以促进 PCC 的功能的移动应用程序。随着移动应用程序的普及,移动应用程序的设计需要整合患者,以确保其功能促进参与度和激活度。需要进一步研究以了解移动应用程序的使用如何影响患者的参与度和激活度,以及最终影响治疗决策和疾病轨迹。