Grainger Rebecca, Townsley Hermaleigh, White Bonnie, Langlotz Tobias, Taylor William J
Rehabilitation Teaching and Research Unit, Department of Medicine, University of Otago Wellington, Wellington, New Zealand.
Hutt Hospital, Hutt Valley District Health Board, Lower Hutt, New Zealand.
JMIR Mhealth Uhealth. 2017 Feb 21;5(2):e7. doi: 10.2196/mhealth.6956.
Rheumatoid arthritis (RA) is a chronic inflammatory arthritis requiring long-term treatment with regular monitoring by a rheumatologist to achieve good health outcomes. Since people with RA may wish to monitor their own disease activity with a smartphone app, it is important to understand the functions and quality of apps for this purpose.
The aim of our study was to assess the features and quality of apps to assist people to monitor their RA disease activity by (1) summarizing the available apps, particularly the instruments used for measurement of RA disease activity; (2) comparing the app features with American College of Rheumatology and European League against Rheumatism (ACR and EULAR) guidelines for monitoring of RA disease activity; and (3) rating app quality with the Mobile App Rating Scale (MARS).
Systematic searches of the New Zealand iTunes and Google Play app stores were used to identify all apps for monitoring of RA disease activity that could be used by people with RA. The apps were described by both key metadata and app functionality. App adherence with recommendations for monitoring of RA disease activity in clinical practice was evaluated by identifying whether apps included calculation of a validated composite disease activity measure and recorded results for future retrieval. App quality was assessed by 2 independent reviewers using the MARS.
The search identified 721 apps in the Google Play store and 216 in the iTunes store, of which 19 unique apps met criteria for inclusion (8 from both app stores, 8 iTunes, and 3 Google Play). In total, 14 apps included at least one validated instrument measuring RA disease activity; 7 of 11 apps that allowed users to enter a joint count used the standard 28 swollen and tender joint count; 8 apps included at least one ACR and EULAR-recommended RA composite disease activity (CDA) measure; and 10 apps included data storage and retrieval. Only 1 app, Arthritis Power, included both an RA CDA measure and tracked data, but this app did not include the standard 28 tender and swollen joint count. The median overall MARS score for apps was 3.41/5. Of the 6 apps that scored ≥4/5 on the overall MARS rating, only 1 included a CDA score endorsed by ACR and EULAR; however, this app did not have a data tracking function.
This review found a lack of high-quality apps for longitudinal assessment of RA disease activity. Current apps fall into two categories: simple calculators primarily for rheumatologists and data tracking tools for people with RA. The latter do not uniformly collect data using validated instruments or composite disease activity measures. There is a need for appropriate, high-quality apps for use by rheumatologists and patients together in co-management of RA.
类风湿关节炎(RA)是一种慢性炎症性关节炎,需要长期治疗并由风湿病学家定期监测以取得良好的健康结果。由于类风湿关节炎患者可能希望通过智能手机应用程序自行监测疾病活动,因此了解此类应用程序的功能和质量很重要。
我们研究的目的是评估协助人们监测类风湿关节炎疾病活动的应用程序的特征和质量,具体包括:(1)总结现有应用程序,特别是用于测量类风湿关节炎疾病活动的工具;(2)将应用程序的功能与美国风湿病学会和欧洲抗风湿病联盟(ACR和EULAR)监测类风湿关节炎疾病活动的指南进行比较;(3)使用移动应用程序评分量表(MARS)对应用程序质量进行评级。
通过系统搜索新西兰iTunes和谷歌应用商店,识别所有可供类风湿关节炎患者用于监测疾病活动的应用程序。通过关键元数据和应用程序功能对这些应用程序进行描述。通过确定应用程序是否包括经过验证的综合疾病活动指标计算并记录结果以供未来检索,来评估应用程序在临床实践中对类风湿关节炎疾病活动监测建议的遵循情况。由两名独立评审员使用MARS对应用程序质量进行评估。
搜索在谷歌应用商店中识别出721个应用程序,在iTunes商店中识别出216个应用程序,其中19个独特的应用程序符合纳入标准(8个来自两个应用商店,8个来自iTunes,3个来自谷歌应用商店)。总共有14个应用程序包括至少一种用于测量类风湿关节炎疾病活动且经过验证的工具;在允许用户输入关节计数的11个应用程序中,有7个使用了标准的28个肿胀和压痛关节计数;8个应用程序包括至少一种ACR和EULAR推荐的类风湿关节炎综合疾病活动(CDA)指标;10个应用程序包括数据存储和检索功能。只有1个应用程序“关节炎力量”(Arthritis Power)既包括类风湿关节炎CDA指标又可跟踪数据,但该应用程序未包括标准的28个压痛和肿胀关节计数。应用程序的MARS总体评分中位数为3.41/5。在MARS总体评分≥4/5的6个应用程序中,只有1个包括ACR和EULAR认可的CDA评分;然而,该应用程序没有数据跟踪功能。
本综述发现缺乏用于类风湿关节炎疾病活动纵向评估的高质量应用程序。当前的应用程序分为两类:主要供风湿病学家使用的简单计算器和供类风湿关节炎患者使用的数据跟踪工具。后者并非都使用经过验证的工具或综合疾病活动指标统一收集数据。需要有合适的高质量应用程序供风湿病学家和患者共同用于类风湿关节炎的联合管理。