College of Health Professions, Medical University of South Carolina, 151B Rutledge Ave., Charleston, SC, 29403, USA.
School of Health and Rehabilitation Sciences, The Ohio State University, Columbus, OH, USA.
J Autism Dev Disord. 2018 Apr;48(4):1133-1146. doi: 10.1007/s10803-017-3348-1.
Understanding characteristics associated with burden in caregivers of children with autism spectrum disorder (ASD) is critical due to negative health consequences. We explored the association between child sensory subtype, sensory dimension scores, and caregiver burden. A national survey of caregivers of children with ASD aged 5-13 years was conducted (n = 367). The relationship between variables of interest and indicators of caregiver burden, including health-related quality of life (HRQOL) and caregiver strain, was examined with canonical correlation analyses. Caregiver strain was, but caregiver HRQOL was not, significantly associated with child sensory subtype and sensory dimension scores. Caregiver age, child age, and household income were also associated with caregiver strain. Potential explanatory mechanisms for these findings, derived from published qualitative studies, are discussed.
了解与自闭症谱系障碍（ASD）儿童照顾者负担相关的特征至关重要，因为这会对其健康产生负面影响。我们探讨了儿童感官亚型、感官维度评分与照顾者负担之间的关系。对 5-13 岁 ASD 儿童的照顾者进行了一项全国性调查（n=367）。使用典型相关分析检验了与感兴趣变量和照顾者负担指标（包括健康相关生活质量（HRQOL）和照顾者压力）相关的关系。照顾者压力与儿童感官亚型和感官维度评分显著相关，但照顾者 HRQOL 则不然。照顾者年龄、儿童年龄和家庭收入也与照顾者压力有关。讨论了这些发现的潜在解释机制，这些机制源自已发表的定性研究。
