Nursing School of Porto, Center for Health Technology and Services Research (CINTESIS), 4200-450 Porto, Portugal.
Nursing in Hospital da Luz-Póvoa de Varzim, 4490-592 Póvoa de Varzim, Portugal.
Int J Environ Res Public Health. 2023 Jan 13;20(2):1449. doi: 10.3390/ijerph20021449.
Communication between the multidisciplinary team, the person, and the family in palliative and end-of-life situations implies, in most situations, a high negative emotional burden. Therefore, innovative strategies are needed to reduce it. The goal of this study is to describe the various stages of development and validation of a collaborative card game for people in palliative care and their families. Phase one is an exploratory study, Phase two is a Delphi study, and Phase three is a multiple case study. Participants for phases 2 and 3 were recruited using a convenience sampling method. The results demonstrate in an organized and structured way the different phases required to build a collaborative card game. The use of the game was found to be useful and effective. Four categories emerged from the content analysis of the open-ended responses: usability, evaluation tool, communication and therapeutic relationship, and meaning when using the game. A collaborative game in palliative care helps to create a space for individuals and families to express feelings and experiences, meeting the myriad of physical, psychosocial, and spiritual needs. The "Pallium game" is a useful and impactful approach to discussing sensitive topics in palliative care.
在姑息治疗和临终关怀情况下,多学科团队、患者和家属之间的沟通在大多数情况下意味着高度的负面情绪负担。因此,需要创新策略来减轻这种负担。本研究的目的是描述一种用于姑息治疗患者及其家属的协作卡牌游戏的开发和验证的各个阶段。第一阶段是探索性研究,第二阶段是德尔菲研究,第三阶段是多案例研究。第二和第三阶段的参与者是通过便利抽样法招募的。研究结果以有组织和结构化的方式展示了构建协作卡牌游戏所需的不同阶段。研究发现,使用游戏是有用且有效的。从对开放式回答的内容分析中出现了四个类别:可用性、评估工具、沟通和治疗关系以及使用游戏时的意义。姑息治疗中的协作游戏有助于为个人和家庭创造一个表达感受和体验的空间,满足身体、心理社会和精神方面的各种需求。“ Pallium 游戏”是一种在姑息治疗中讨论敏感话题的有用且有影响力的方法。