Desai Priti P, Wadhvani Perminder, Staniec Elisa
Greenville, NC 27858 USA Human Development and Family Science Department, East Carolina University.
Balwadi Project, Baroda Citizens Council, Vadodara, India.
Psychol Stud (Mysore). 2023;68(2):138-148. doi: 10.1007/s12646-022-00711-5. Epub 2023 Jan 18.
This narrative review paper aims to build a common understanding of the vulnerabilities of children with chronic medical conditions who face exceptional challenges due to nature of the illness, deformity, injury, and traumatic healthcare encounters which could potentially lead to long-term psychological effects. The presence of chronic medical diagnoses in children and the subsequent impacts including social stigma, as well as their age and developmental level, may amplify adjustment challenges in parenting considerations, school, peer relations, career, and future relationships. Children may be traumatized by unfamiliar and painful healthcare experiences. Hospitalization can lead to increased feelings of isolation, fear, and self-doubt when children do not receive emotionally safe psychological support necessary to minimize the accompanying stress and anxiety. School experiences and parenting children with chronic illnesses have additional intersecting socialization characteristics. This paper highlights a vision for furthering the groundwork within Indian pediatric settings to promote emotional safety and psychosocial care. Principles from the United Nations Convention on the Rights of the Child and the World Health Organization's definition of health create an impetus for giving a voice to children with chronic medical conditions. While there are sporadic psychosocial services for children with chronic needs, they lack consistency, and this indicates a need and an opportunity for developing a unique career for human development and psychology professionals to address these concerns. As exemplars, two psychosocial care programs in India that help foster resilience in these children are highlighted. Although limited, extant research regarding the experiences of children with chronic medical conditions in India is discussed, and implications for future research and academic initiatives are interwoven within this paper.
本叙述性综述文章旨在使人们对患有慢性疾病的儿童的脆弱性形成共识，这些儿童由于疾病性质、畸形、损伤以及痛苦的医疗遭遇而面临特殊挑战，这可能会导致长期的心理影响。儿童慢性疾病诊断的存在及其后续影响，包括社会污名，以及他们的年龄和发育水平，可能会加剧在育儿考量、学校、同伴关系、职业和未来人际关系方面的适应挑战。儿童可能会因陌生且痛苦的医疗经历而受到创伤。当儿童没有得到必要的情感安全心理支持以尽量减少随之而来的压力和焦虑时，住院可能会导致孤独感、恐惧感和自我怀疑感增加。学校经历以及抚养患有慢性病的儿童具有额外的交叉社会化特征。本文强调了在印度儿科环境中进一步奠定基础以促进情感安全和心理社会护理的愿景。《联合国儿童权利公约》的原则以及世界卫生组织对健康的定义为患有慢性疾病的儿童发声创造了动力。虽然为有长期需求的儿童提供了零星的心理社会服务，但这些服务缺乏连贯性，这表明需要并有机会为人类发展和心理学专业人员发展独特的职业来解决这些问题。作为范例，本文突出了印度的两个有助于培养这些儿童恢复力的心理社会护理项目。尽管有限，但本文讨论了关于印度患有慢性疾病儿童经历的现有研究，并将其与对未来研究和学术倡议的影响交织在一起。
