Ugarte-Gil Manuel F, Fuentes-Silva Yurilis, Pimentel-Quiroz Victor R, Pons-Estel Guillermo J, Quintana Rosana, Pons-Estel Bernardo A, Alarcón Graciela S
Grupo Peruano de Estudio de Enfermedades Autoinmunes Sistémicas, School of Medicine, Universidad Científica del Sur, Lima, Peru.
Department Rheumatology, Hospital Nacional Guillermo Almenara Irigoyen, EsSalud, Lima, Peru.
Front Med (Lausanne). 2023 Jan 11;9:988191. doi: 10.3389/fmed.2022.988191. eCollection 2022.
Systemic lupus erythematosus (SLE) affects more severely non-White populations, due to their genetic background and sociodemographic characteristics. Several studies have evaluated Latin American SLE patients to determine their genetic and clinical characteristics as well as prognostic factors; these studies have not only allowed the development of treatment guidelines aimed at the region but also to support regional and global projects. Additionally, educational activities in Spanish and Portuguese have been started to reduce our patients' health illiteracy. Despite the relatively low research output from Latin American countries, we consider that studies from our region coupled with the networks developed to increase our capabilities, could be a model for other rare autoimmune diseases.
系统性红斑狼疮(SLE)对非白人人群的影响更为严重,这归因于他们的遗传背景和社会人口学特征。多项研究评估了拉丁美洲的SLE患者,以确定其遗传和临床特征以及预后因素;这些研究不仅推动了针对该地区的治疗指南的制定,还为区域和全球项目提供了支持。此外,已经开展了西班牙语和葡萄牙语的教育活动,以降低我们患者的健康知识匮乏程度。尽管拉丁美洲国家的研究产出相对较低,但我们认为,我们地区的研究以及为提高我们的能力而建立的网络,可以成为其他罕见自身免疫性疾病的典范。