Dong Dong, Xiong Shiyi, Nichini Elena, Chen Xiaoqiong, Liu Binjuan, Zhu Liling, Yip Faustina Fu, Sun Luming, Zhu Jianfeng
JC School of Public Health and Primary Care, Faculty of Medicine, The Chinese University of Hong Kong, Shatin, Hong Kong SAR, China.
Shenzhen Research Institute, The Chinese University of Hong Kong, Shenzhen, Guangdong, China.
Front Med (Lausanne). 2023 Jan 11;9:986851. doi: 10.3389/fmed.2022.986851. eCollection 2022.
Due to the changing medical demands in the healthcare system, there is a need for a standardized and professionalized curriculum for genetic counselors. This mixed-method study will observe and evaluate the first Peer Experiential and Reciprocal Supervision (PEERS) training program on genetic counseling among medical practitioners in China; to provide feedback and recommendation for future training and practices.
A genetic counselor training program was held from December 10-11, 2016 in a fetal medicine unit and prenatal diagnosis center in Shanghai with 59 participants from clinical centers, hospitals, and organizations in China. An ethnographic reflexive assessment with a structured questionnaire were used to provide insights and feedback on the training experience.
Results indicate an inadequate mastery of genetic and fetal knowledge; lack of empathetic understanding and cultural sensitivity; difficulties in adopting a non-directive counseling approach; distance between reality and fictionality in the training; overall training's helpfulness.
The professionalization of genetic counseling in China is in the making with the soaring demands for genetic counseling services; this first experiment of PEERS training turned out to be needed, worth to be adapted toward medical centers across China, to better understand and face the challenges rising from genetic counseling practice.
鉴于医疗保健系统中不断变化的医疗需求,需要为遗传咨询师制定标准化和专业化的课程。这项混合方法研究将观察和评估中国医学从业者中首个关于遗传咨询的同伴体验与相互监督(PEERS)培训项目;为未来的培训和实践提供反馈和建议。
2016年12月10日至11日,在上海的一个胎儿医学科室和产前诊断中心举办了一次遗传咨询师培训项目,来自中国临床中心、医院和机构的59名人员参加。采用带有结构化问卷的人种志反思评估,以提供对培训体验的见解和反馈。
结果表明,对遗传和胎儿知识的掌握不足;缺乏同理心理解和文化敏感性;采用非指导性咨询方法存在困难;培训中现实与虚构之间存在差距;总体培训的帮助性。
随着对遗传咨询服务需求的飙升,中国遗传咨询的专业化正在形成;PEERS培训的首次试验被证明是必要的,值得在中国各地的医疗中心推广,以更好地理解和应对遗传咨询实践中出现的挑战。