Jean Yap Quin, Mazlan Rafidah, Ahmad Mahadir, Maamor Nashrah
Audiology Programme, School of Rehabilitation Sciences, Faculty of Health Sciences, Universiti Kebangsaan Malaysia, Kuala Lumpur, Wilayah Persekutuan Kuala Lumpur.
Psychology Programme, Faculty of Health Sciences, Universiti Kebangsaan Malaysia, Kuala Lumpur, Wilayah Persekutuan Kuala Lumpur.
Am J Audiol. 2018 Sep 12;27(3):260-271. doi: 10.1044/2018_AJA-17-0093.
The aim of this study was to develop a substantive theory that explains parenting stress among mothers of deaf or hard-of-hearing (D/HH) children.
Fifteen hearing mothers of children with severe-to-profound sensorineural hearing loss were interviewed. Interviews were transcribed verbatim, and a grounded theory approach was used to inductively analyze parental stress in mothers of D/HH children. Theory generation was achieved through triangulation of data sources and systematic organization of data into codes. The coding process identified salient themes that were constantly cross-checked and compared across data to further develop categories, properties, and tentative hypotheses.
In general, two main themes emerged from the interviews: the contextual stressors and stress-reducing resources. The contextual stressors were labeled as distress over audiology-related needs, pressure to acquire new knowledge and skills, apprehension about the child's future, and demoralizing negative social attitudes. The stress-reducing resources that moderated parenting stress were identified to be the child's progress, mother's characteristics, professional support, and social support. The interaction between the identified stressors and adjustment process uncovered a central theme termed maternal coherence.
The substantive theory suggests that mothers of D/HH children can effectively manage parenting stress and increase well-being by capitalizing on relevant stress-reducing resources to achieve maternal coherence.
本研究旨在构建一种实质性理论，以解释聋儿或重听儿童母亲的育儿压力。
对15名有重度至极重度感音神经性听力损失儿童的听力正常母亲进行了访谈。访谈内容逐字记录，并采用扎根理论方法对聋儿或重听儿童母亲的育儿压力进行归纳分析。通过对数据源进行三角互证以及将数据系统组织成代码来生成理论。编码过程确定了突出主题，并在数据中不断交叉核对和比较，以进一步发展类别、属性和初步假设。
总体而言，访谈中出现了两个主要主题：情境压力源和减压资源。情境压力源被标记为对听力相关需求的困扰、获取新知识和技能的压力、对孩子未来的担忧以及令人气馁的负面社会态度。被确定为减轻育儿压力的减压资源包括孩子的进步、母亲的特质、专业支持和社会支持。已确定的压力源与调整过程之间的相互作用揭示了一个核心主题，即母亲的连贯性。
该实质性理论表明，聋儿或重听儿童的母亲可以通过利用相关减压资源来实现母亲的连贯性，从而有效管理育儿压力并提高幸福感。
