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印度南卡纳塔克邦新生儿听力筛查项目中家长/照顾者的满意度与焦虑情况——一项基于问卷调查的研究

Parental/Caregiver Satisfaction and Anxiety with Newborn Hearing Screening Program in Dakshina Karnataka, India - A Questionnaire Based Study.

作者信息

Ravi Rohit, Dsouza Siona Benita, Saldhanha Samantha, Rao Ananya, Gunjawate Dhanshree R

机构信息

Department of Audiology and Speech Language Pathology, Kasturba Medical College, Mangalore, Manipal Academy of Higher Education, Manipal, India.

出版信息

Indian J Otolaryngol Head Neck Surg. 2024 Dec;76(6):5807-5811. doi: 10.1007/s12070-024-05107-7. Epub 2024 Oct 5.

DOI:10.1007/s12070-024-05107-7
PMID:39559150
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11569351/
Abstract

AIMS

The present study aimed to assess parental/caregiver satisfaction with a Neonatal Hearing screening program and determine the levels of parental/caregiver stress and anxiety at the time of hearing screening/ rescreening.

MATERIALS & METHODS: A cross-sectional study design was adapted to collect data for the current study. The study was conducted in two phases, where phase one included the development of the questionnaire and its validation, and phase two included data collection and statistical analysis.

RESULTS

The questionnaires on parental anxiety and satisfaction with the NHS were administered to 119 participants. These included 65 parents (53.8% mothers and 0.8% fathers) and 54 caregivers (45.3%). 85% of the participants were satisfied by the overall NHS program. More than 80% of participants were satisfied with the information and instructions provided and found it adequate and clear. 60% of participants disagreed that they were tensed. Participants expressed that they would have wanted a chance to ask for more details about the test procedures (85.7%) and results (81.5%).

CONCLUSION

The present study provides valuable information related to maternal/caregiver anxiety and satisfaction related to NHS. There is a need for developing better evidence-based materials and training resources in multiple languages for better dissemination of information and enable timely follow-up.

摘要

目的

本研究旨在评估父母/照顾者对新生儿听力筛查项目的满意度,并确定听力筛查/复筛时父母/照顾者的压力和焦虑水平。

材料与方法

采用横断面研究设计收集本研究的数据。该研究分两个阶段进行,第一阶段包括问卷的编制及其验证,第二阶段包括数据收集和统计分析。

结果

向119名参与者发放了关于父母焦虑和对新生儿听力筛查满意度的问卷。其中包括65名父母(53.8%为母亲,0.8%为父亲)和54名照顾者(45.3%)。85%的参与者对整个新生儿听力筛查项目感到满意。超过80%的参与者对所提供的信息和说明感到满意,认为其充分且清晰。60%的参与者不同意他们感到紧张。参与者表示,他们希望有机会询问有关测试程序(85.7%)和结果(81.5%)的更多细节。

结论

本研究提供了与母亲/照顾者对新生儿听力筛查的焦虑和满意度相关的有价值信息。需要开发更好的多语言循证材料和培训资源,以更好地传播信息并实现及时随访。

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Stress among Parents of Children with Hearing Loss and How They Deal with It: A Systematic Review.听力损失儿童家长的压力及其应对方式:一项系统综述。
Int Arch Otorhinolaryngol. 2022 Aug 1;27(1):e166-e177. doi: 10.1055/s-0042-1743273. eCollection 2023 Jan.
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Outcomes of Universal Newborn Screening Programs: Systematic Review.新生儿普遍筛查项目的结果:系统评价
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