Vovlianou Stavroula, Koutlas Vasileios, Papoulidou Fani, Tatsis Vasilios, Milionis Haralampos, Skapinakis Petros, Dounousi Evangelia
Department of Nephrology, Faculty of Medicine, School of Health Sciences, University of Ioannina, Ioannina, Greece.
Department of Nephrology, General Hospital of Kavala, Kavala, Greece.
Int Urol Nephrol. 2023 Jun;55(6):1619-1628. doi: 10.1007/s11255-023-03482-8. Epub 2023 Feb 1.
Burden of caregivers is a status that was identified as a consequence of daily care. Anxiety and depression are probably related to complex tasks interwined with the care of a family member suffering from chronic kidney disease (CKD).
To examine the experienced burden, anxiety and depression of Greek caregivers of patients with End-Stage CKD on dialysis as well as kidney transplant recipients (TX) in relation to their demographic profile and to compare among the groups.
A total of 396 participants (198 couples of patients and caregivers) were recruited. Structured interviews and self-completed questionnaires were obtained from patients undergoing dialysis modalities as well as TX (28 peritoneal dialysis patients, 137 hemodialysis patients, 33 TX) and their caregivers. Zarit Burden Interview, Beck Depression Inventory and the Generalized Anxiety Disorder-2 scales were used as screening tools.
The majority of caregivers were females (67.2%), with a median age of 58 years. Total burden was indicated as mild to moderate (Mdn = 36 (24-51)). Caregivers of haemodialysis (HD) patients showed the highest burden (Mdn = 40 (26-53)) followed by peritoneal dialysis(PD) (Mdn = 29 (25-51)) and TX group (Mdn = 28 (21-43)) (p = 0.022). Caregivers' depression and anxiety were related to the type of patients' treatment, as well. Caregivers of HD and PD patients reported significantly higher depression (Mdn = 11 (5-18)) and anxiety scores (Mdn = 3 (2-5)) in comparison to TX caregivers (Mdn = 6 (2-13) and Mdn = 2 (2-4)) (p = 0.045 and p = 0.04, respectively).
Caregivers of TX patients appeared to have less burden, depression and anxiety levels compared with caregivers of patients on dialysis modalities. Caregivers' burden is significantly associated with anxiety, depressive symptoms, gender, duration of caregiving, educational level, financial status and caregivers' age.
照顾者负担是一种因日常照料而产生的状态。焦虑和抑郁可能与照顾患有慢性肾脏病（CKD）的家庭成员时交织的复杂任务有关。
研究希腊终末期CKD透析患者及肾移植受者（TX）的照顾者所经历的负担、焦虑和抑郁情况，并探讨其与人口统计学特征的关系，同时比较各群体之间的差异。
共招募了396名参与者（198对患者和照顾者）。从接受透析治疗的患者以及TX（28名腹膜透析患者、137名血液透析患者、33名TX）及其照顾者处获取结构化访谈和自我填写问卷。使用 Zarit 负担访谈量表、贝克抑郁量表和广泛性焦虑障碍-2量表作为筛查工具。
大多数照顾者为女性（67.2%），中位年龄为58岁。总体负担显示为轻度至中度（中位数 = 36（24 - 51））。血液透析（HD）患者的照顾者负担最重（中位数 = 40（26 - 53）），其次是腹膜透析（PD）患者的照顾者（中位数 = 29（25 - 51））和TX组（中位数 = 28（21 - 43））（p = 0.022）。照顾者的抑郁和焦虑也与患者的治疗类型有关。与TX患者的照顾者相比，HD和PD患者的照顾者报告的抑郁（中位数 = 11（5 - 18））和焦虑得分（中位数 = 3（2 - 5））显著更高（TX患者照顾者的中位数分别为6（2 - 13）和2（2 - 4））（p分别为0.045和0.04）。
与透析患者的照顾者相比，TX患者的照顾者负担、抑郁和焦虑水平似乎更低。照顾者的负担与焦虑、抑郁症状、性别、照顾时长、教育水平、经济状况和照顾者年龄显著相关。
