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特应性皮炎患儿及其照护者的生活质量。

Quality of life of pediatric patients with atopic dermatitis and their caregivers.

机构信息

Postgraduate Program in Medical Sciences, Universidade Federal de Santa Catarina, Rua Alves de Brito, 492/302, Florianópolis, Santa Catarina, CEP 88015-440, Brazil.

Pediatric Dermatology Outpatient Clinic, Hospital Infantil Joana de Gusmão, Florianópolis, Santa Catarina, Brazil.

出版信息

Arch Dermatol Res. 2023 Aug;315(6):1571-1576. doi: 10.1007/s00403-023-02544-2. Epub 2023 Feb 1.

DOI:10.1007/s00403-023-02544-2
PMID:36723680
Abstract

To compare the quality of life (QoL) of children with and without atopic dermatitis (AD) and that of their caregivers and to assess their QoL according to different degrees of AD. This is a cross-sectional, case-control study conducted with patients aged between 4 and 12 years with and without AD and their caregivers. Patients were treated at the Pediatric Dermatology Outpatient Center and the Childcare Center of the Joana de Gusmão Children's Hospital, respectively, from June 2021 to March 2022. The QoL Assessment Scale Autoquestionnaire Qualité de Vie Infant Imagé (AUQEI) was applied to children and adolescents with AD and the control group while the World Health Organization Quality of Life assessment instrument was administered to their caregivers. Fifty cases and fifty controls were included in this study. When assessing the QoL of the case and control groups, statistically significant differences were found in the domains of the AUQUEI instrument. Regarding QoL and AD severity, a statistically significant difference was seen (p = 0.027) when comparing moderate and severe SCORAD scores. When comparing the QoL of children with and without AD, a difference was seen between the two groups. The QoL of AD patients was worse and related to the severity of the disease. A better QoL was found among the caregivers in the control group. In the case group, the higher the SCORAD score, the worse the QoL. No relationship was found between AD severity and the QoL of the caregivers in the case group.

摘要

目的

比较特应性皮炎(AD)患儿及其照料者的生活质量(QoL),并根据 AD 严重程度评估其 QoL。方法:这是一项横断面病例对照研究,纳入了 2021 年 6 月至 2022 年 3 月期间在若阿纳·德古斯曼(Joana de Gusmão)儿童医院皮肤科门诊中心和儿童保健中心就诊的 4 至 12 岁 AD 患儿及其照料者。采用特应性皮炎儿童生活质量评估量表自动问卷(AUQEI)评估 AD 患儿和对照组儿童的 QoL,采用世界卫生组织生活质量评估工具评估其照料者的 QoL。结果:本研究共纳入 50 例病例和 50 例对照。在评估病例组和对照组的 QoL 时,AUQUEI 量表的各领域存在统计学显著差异。在 QoL 与 AD 严重程度方面,中重度 SCORAD 评分之间存在统计学显著差异(p=0.027)。在比较 AD 患儿和无 AD 患儿的 QoL 时,两组之间存在差异。AD 患儿的 QoL 更差,与疾病严重程度相关。对照组照料者的 QoL 更好。在病例组中,SCORAD 评分越高,QoL 越差。病例组中 AD 严重程度与照料者的 QoL 之间无相关性。

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