Development of Quality of Life Due to Dysphagia Questionnaire for Caregivers of Individuals with Dysphagia (QOLC-M).

Caregivers play an important role in providing care for patients with dysphagia and experience various psychosocial issues, but these areas remain unexplored. There is paucity of tools to assess quality of life of caregivers of individuals with dysphagia attending to these cases. Hence, a need was felt to carry out the present study to develop a tool to assess quality of life for caregivers of individuals with dysphagia. Construction of questionnaire was done in Marathi language and validated by native Marathi speakers and face validity by experts. The questionnaire was administered on 30 caregivers of individuals with dysphagia.A detailed case history, demographic information of the caregivers was noted and questionnaire was administered on the caregivers using interview method. The data was subjected to measures of internal consistency and reliability. Statistical analysis revealed a high item to total correlation (0.6-0.92).Internal consistency was found to be high (α = 0.95) while Intraclass Correlation Coefficient (ICC) was administered for reliability revealing high reliability (ICC = 0.85).The analysis of responses of the caregivers on the statements revealed moderate to high scores for many statements indicating impact of dysphagia on activities of daily living, social aspects, feelings and attitudes and problems faced during feeding. QOLC-M was found to be a tool with high reliability and internal consistency. It could identify the impact of dysphagia on caregiver's QOL highlighting specific problems faced by them.